Myles Scriven’s inquest judgement

Assistant Coroner Crispin Oliver today read out his judgement in the inquest of 31 year old Myles Scriven who died of a pulmonary embolism on April 16 2023 at Huddersfield Royal Infirmary. The full judgement can be read here: https://www.georgejulian.co.uk/2025/07/11/myless-inquest-coroners-conclusion/

This fifteen page judgement is an excoriating and devastating read. The coroner’s meticulous engagement with the evidence (which included witness statements and spoken evidence, hospital and GP medical records going back two years before Myles died, four expert witness reports and the recordings of earlier parts of the inquest) is clear. The judgement reads like an intensely plotted narrative with every word underpinned by evidence sources, the workings out carefully documented. It ends with an unexpected and beautifully sharp twist.

It is also a refreshing read, shot through with common sense and hints of incredulity. Myles should not have died, he experienced a bewildering set of failings across primary and secondary healthcare despite the active interventions of a loving family which includes a senior medic.

The coroner discusses how deaths from natural causes can be made unnatural, reminding me of the defence barrister at Connor’s inquest arguing drowning was a natural cause of death. The Oxford coroner sharply rebuked this argument and while largely fair, lacked the understanding Crispin Oliver demonstrated. His understanding was in part due to the commissioning of an expert witness report from learning disability expert Dr Liz Herrievan which offered incontrovertible evidence of the numerous failings. Having an expert witness in autism and learning disability is so obvious, I’m still pondering why it is not done as standard practice. We recently published a paper discussing how the ignorance of coroners can contribute to the harms generated by coronial processes for families, as well as obstruct accountability. Getting an expert in this area is a superb workaround leading to more robust engagement and arguably a knock on effect on outcomes.

Like many of the inquests covered by George Julian, the facts in Myles’ case offer an extraordinary array of failings; blood thinning medication was clearly not working and yet the consultant refused to switch to warfarin, an ECG was performed but the results not communicated to anyone leading to a lack of a follow up appointment and review three months later. The discharge letter from the hospital was “borderline useless”. By this time, despite Myles’ obvious deterioration in health, a phone call with the GP led to a note of ‘sounded ok on the phone’ on his file and an appointment three days later resulted in the incomplete recording of medical notes and safety netting advice. Myles died three weeks later.

What the coroner lays out in this judgement is a) the knowledge about Myles communicated to the hospital by his family (take time, don’t use long words or jargon, listen to the family, etc etc etc) and b) the absence of any engagement with this knowledge by professionals. This can only be wilful. The coroner reported a sense of disbelief earlier in the inquest that the hospital had in place all the necessary adjustment mechanisms, including a learning disability nurse and ongoing training, and yet none of this had any impact on the care Myles received. The lack of a hospital passport was flagged as problematic, though given the (non) actions of most professionals around Myles, I’m not sure they’d have even noticed it through their disinterested and disconnected lenses.

The coroner noted that these adjustments were essential to Myles’ care and should have been followed to the letter. Of course they should. As they should in the case of any autistic person or person with learning disabilities. And yet they aren’t. “The evidence is that this did not happen at any point in the timeline of events”. How is it possible for none of these standards to be adhered to? Again, returning to George’s inquest coverage, how many other deaths were due to failings in the most basic standards of care?

The coroner states “GPs demonstrated in their evidence that they had very little real grasp of the technical and regulatory requirements” in connection to patients with learning disabilities. Two GP’s who gave evidence did not understand what the Learning Disabilities register was or how it worked. I’m reminded of a study which found GPs didn’t know what the flag was or where to find it. Extraordinary ignorance that you think would be remedied by implicated professionals hastily with some mortification. But no. This is all apparently fine.

[Myles’ death was of so little consequence to the GPs they did not instruct legal representation until forcefully told they should by the coroner.]

In a gruelling paragraph, the coroner described how he’d come to the conclusion that the GP surgery was so woeful in practice that the character of neglect was not present; neglect can only be considered if the person obviously presents as ill. Drs Clownster and Clownstar were too clueless to notice.

I had to read the final pages of the judgement a few times as the coroner’s narrative arc is blistering. Myles died of a pulmonary embolism. The lack of adjustments made in relation to his learning disabilities resulted in incorrect decision making contributing to his death. I question the coroner’s use of ‘incorrect decision making’ here. The Dr who refused to change the medication that clearly wasn’t working couldn’t really account for this ‘decision’ saying he thought Myles had compliance issues around medication. This strikes me as more of a post-hoc rationalisation. The character of medical decision-making seems to involve more gravitas than simply not bothering to do something or ever following it up. 

A Prevention of Future Deaths (PFD) Report was unsurprisingly issued to the GP surgery. In relation to the NHS Trust, there was the usual bullshit about changes implemented since Myles died which generated more words for the continually overflowing learning pot. And then the coroner smacks the judgement out of the park by issuing a second PFD to the Trust:

Tell me how best practice is going to be complied with and by when.

Wow. Yes. Please do. Adjustments (including mandatory training) simply don’t work. Ticking the box is a pointless and dangerous distraction.

I hope this judgement is read by other coroners as well as health (and absent social care) professionals. Myles was let down so blinking badly the report is a devastating, important, even groundbreaking read. Yet another much loved young person treated as disposable by health and social care professionals. Crispin Oliver, however, showed him and his family much respect, listened to their consistent and informed interventions and questions thoughtfully, and shed light on the absurdities woven through our supposedly universal healthcare system.

Thank you.

5 thoughts on “Myles Scriven’s inquest judgement

  1. Thank you – harrowing – pointing again to the fact that families are ignored and their knowledge dismissed as anecdotal – when it is often the truth about the person – even as personal welfare deputies we get dismissed by clinical consultants – and we do not accept this – feedback and feedback – its seems like even though we wish to stop fighting and work with the clinicians involved in our child’s support they are so intent on fighting families – luckily for him and us the community team and his support team are angels – but the hospital consultants do not seem to understand what listening might even be!!! work WITH care FOR – do not do TO or too much do FOR

    love phil

  2. In the 1980’s 1990’s families were seen to deny their adult learning disabled sons and daughter’s a full life by ‘keeping them with at home’. Not unknown to hear conference jeers at older parents of adult LD people so restrained by their them – were, ‘Carrying teddy bears and wearing ankle socks’.

    Institutions were emptied and LD people decanted into ‘care in the community’. Families encouraged to encourage LD sons and daughters to move out and marry and ‘have a full life’.

    In the year 2025 older people with LD who live independently will have seen their weary family go to Law, many more than once, to obtain them an education, safe support and fair and safe access to health care. Many others will also have had to turn to the Law and or the LGO to prove that the avoidable harm so long denied, happened.

    In 2025 LD people find long delays for assessment for support and longer delay for this support to arrive. Commissioners bound to find the cheapest tender find support from transitory, zero hours paid domiciliary workers hired only to wash and feed. All else is to be fought for by their families – especially when access to health care is delayed from no one noticing son or daughter is ill. More so when LD son daughter is ill – and the essential hygiene support is seen as an unnecessary extra.

    In this model even with vigilant families to span empathy and support gaps with their health, energy and time, holes in every aspect of health and social care for many LD people are now massive.

    And when families die these gaps become a chasm.

    Add to this the almost routine abandonment of any Duty of Candor by NHS and LA where worried concerns are translated into unwelcome complaints; weary questioners aggressively challenged and valid fears avoided – in the, usually, long delayed reply.

    Learning disabled people are dying from all……………… of this.

    • cont:

      mothers and fathers with natural desire to live own longest healthiest span – have the additional responsibility to outlive their learning disabled ‘child’ for fear of leaving them alone to face a miserable and potentially shortened span.

      LA Day and Respite Services have had pretty mixed press over decades – some are very good and some not so. However these Services currently have a crucial role in offering some oversight of the well being of LD people who no longer live at home with their family and even more so those who no longer have any relatives.

      LA’s in many parts of the county are ‘consulting’ on their intention to close down these essential resources.

      The families who are currently very actively challenging the removal of this last visible fragment of already wobbly Statutory Responsibility- eg ‘ if cannot care then to do no harm’ – are only too closely aware that if these Services die – then many more of our sons and daughters will … also.

  3. Pingback: georgejulian.co.uk » Thoughts on Myles Scriven’s inquest

  4. As always Sara it proves that learning disabled people are so far down on the pecking order in our society that they not worth bothering about.

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