You know that saying; that things can’t get worse? Well that’s turning out to be a load of old codswallop. After the whole CPA meeting surprise (see yesterday’s cheeky little number for details) and, as yet, no sniff of what the future might hold for LB (Don’t. Just don’t even mention support), I went to visit him yesterday evening. He was in bed, dozing. With a bitten swollen tongue. Signs of a seizure. Or size of an elephant it might well have been.
The bitten tongue had been noted and Bonjela on order. The seizure dimension overlooked. LB’s seizures have always worried the pants off me. Not least because it took about four ‘in your face’ tonic clonic epics before the docs would even entertain the idea that he might have epilepsy. We were tripping over that old ‘he’s got to learn to manage his stress/star charts anyone?’ chestnut (a.k.a. the learning disability trump card) for months.
The thought of him having a seizure, in a locked unit, unnoticed, has generated a new level of distress I can’t describe. I don’t care how old he is, and I certainly ain’t treating him like a child, but I want to comfort him, and keep a watchful eye for any further seizures. And I can’t.
I AM SAD TO HEAR THIS AND WAS VERY SAD TO HERE YESERDAYS POST. I GONE IN TO IF ONLY MODE , IF ONLY I HAD A BUILDING IF ONLY I HAD STAFF, IF ONLY WE HAD THE MONEY FOR A MINIBUS AND OUTINGS….BUT THIS SHOULD ALL BE THERE IN PLACE IN DIFFERENT SETTINGS AND NICE SURROUNDINGS…I’M WITH YOU SARA SOMETHING NEEDS TO BE DONE AND QUICKLY, ONCE IN A RUN DOWN TOWN THERE WAS NOTHING FOR THE CHILDREN TO DO SO THEY KEPT GETTING IN TROUBLE FROM NOTHING A BAND OF NOBLE WARRIORS SET UP A CLUB ON GOOD WILL AND HARD WORK ITS HAPPENING STILL ALL OVER THE COUNTRY.
wHAT SMALL ENTERPRISE IN THIS REGION DO YOU THINK COULD HELP MANY LEARNING DISABLED INTERACT FEEL INVOLVED IN SOME USEFULL FOR THEM AND THEIR LOCAL COMMUNITY. ANY WELTHY BACKERS OUT THERE WHO WANT TO GET SOME THING SPECIAL OF THE GROUND. iTS NEEDS TO BE OBTAINABLE TO THE GROUP IT SERVES ASWELL AS OFFERRING SOCIAL BENEFITS, FRIENDSHIPS A SHARING OF SKILLS AND INTERESTS. there are lots of people who will volunteer and share knowledge in this day and age the problem of getting things started is all the red tape, and the override of health and safety (like not being able to play conkers).
Good luck Sara thinking of you.
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