I was going to do some work today. I’m on leave till Jan 5th but have a chunklet of work to catch up with. This is something I didn’t really have before. Not because I’m great but because I just did my work. More of an obedience type thing really. These days I have a hell of lot of other stuff to engage/deal with. On top of ‘work’. Another consequence. Another thing on the pile of ‘now life is like this’.
But I didn’t get round to working. I stayed in bed for ages, got up and just didn’t want to. Christmas was a pretty agonising experience. And I felt knackered. This evening I caught up with some reading. Recent disability related articles. This was a bit of a treat really. Some right old tasty morsels. Though a lot of returning to the distinction between medical/social models of disability. [Medical model: disability is an individual, tragic thing to be cured, social model: it’s to do with the organisation/structure of society rather than an individual problem].
I got to thinking about the Verita investigation into LB’s death. This (excellent) report was kind of something and then, in many ways, nothing. It clearly stated that LB’s death was preventable [howl] and carefully laid out the reasons why. But nothing has actually happened as an outcome. And the micro details remain largely unremarked upon.
Ironically, having spent most of my postgraduate learning immersed in disability studies, what happened to LB, and what is detailed in this report, kind of turns the medical/social distinction upside down. The health professionals involved collectively denied that LB was having seizures. Despite his diagnosis of epilepsy and me stating that he was having increasing seizure activity. They kicked out the individual impairment argument.
Why? Why would you do that?
- They were simply crap?
- They couldn’t give a shit?
- They were arrogant enough to make pronouncements based on, er, fuck all?
I don’t know (though I suspect it could have been a combination of the three).
I fail to understand how anyone with (any) medical training, would argue that someone with a history of epilepsy (hard won but ‘granted’ eventually) was not experiencing seizures. Why would you? For what reason? For what outcome?