Sloven and the earlier death of a patient

One of the various devastating moments during LB’s inquest was the revelation that another patient had died in the same bath in 2006. Can you imagine?

As difficult as it is to believe, the same psychiatrist, Dr J, who rang me at work the morning LB died in a pretty lackadaisical way, signed the patient’s death certificate in June 2006. The two 999 calls made the morning LB died were played in court. (The unit phone wasn’t working). I didn’t listen to the first but the second, by Dr J, was extraordinary in that the operator, after three or four minutes of collecting detail, was completely unaware of the urgency of the situation and was going to tick a ‘within four hours’ response box. Can you imagine?

Dr J meanwhile seems to have remained resolutely unreflective about these two events, not mentioning the earlier death in her statement or live evidence and mouthing to me across the court ‘Are you ok?’

At least two other staff members were working in STATT in 2006. No one mentioned this earlier patient in their statement or evidence. Or during the Verita ‘investigation’. No one saw the bath as a potentially risky space. No one seemed to give a shit.

The bare facts: a patient in his 50s had a seizure in the bath (non epileptic seizure though how this was determined is a mystery to me) with someone present who apparently struggled to get him out of the bath. His cause of death is recorded as 1a. convulsion with asphyxiation due to 1b. malnutrition, and 2a. contributing cause depression. There was no postmortem or inquest. The coroner is now investigating whether an inquest should be reopened into his death.

Sloven, of course, come out of this deeply sad tale coated in crapshite. The more recent back story: Back in March 2014, a CQC inspection of a unit on the Slade House site (next to the now closed STATT unit) criticised a bath ban. Dr M, the consultant psychiatrist (who together with her barrister must qualify for some unaward for the pond scummish smear tactics they repeatedly employed during the inquest) apparently vaguely recalled a patient dying back in the day, that the baths were found to be unsafe as they were too deep and after some ‘leadership mentoring’ (always a dangerous thing for those who shouldn’t be within whiff of leadership) banned baths.

This ban, falling foul of the CQC, caused an on the spot investigation on the instruction of Sloven execs. [NB. The same execs who didn’t go near STATT after LB’s death to check the provision was safe for other patients.  Death schmeath*. It takes a CQC inspection and hint of bad publicity to get action. Every time]. Once the earlier death came to light, Sloven management apparently actively discouraged Dr M from raising this issue further. She left Sloven’s employment (on what terms?), relinquished her licence in the UK and went back to Ireland to, erm, ‘practice’ there.There was then an apparent burying of this information until the first week of the inquest when it was disclosed by Dr M’s legal representative. Sloven did their best to re-bury it during the inquest by insisting the patient died of cardiac arrest in very different circumstances. Mmm. (Same) bath, seizure, death… I dunno. Strikes me as pretty fucking relevant, at least to be disclosed in order for any relevance to be properly examined.

What a sad and sleazy little tale. From a public sector body who claim 100% candour compliance in their 2014/5 annual report. The deliberate concealment of a similar death on the part of Sloven (even to their legal representative) revealed in an obscure and disingenuous way during the inquest. Adding even more (I didn’t think it was possible) distress to a harrowing experience.

We’re left wondering what else hasn’t been disclosed? How often does this level of cover up happen within the NHS? And was there any point to the Francis Inquiry?

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*As the Mazar’s death review will reveal, in harrowing detail if it’s ever published.

A veritable situation

I’m beginning to think about the inquest with a bit of coherence after a shaky week in which Rich and I repeatedly started sentences “I still can’t believe that…” Some mysteries remain and we have a lot of questions still. Like how the fuck can learning disabled people continue to be treated so badly in 2015?? This is probably the first of a few rambling posts reflecting on this stuff.

My mum has post-inquest shingles which is seriously crap. Can you imagine? Someone needs to look urgently at the enormous emotional, physical and financial cost this system imposes on families. NHS Trusts should not be allowed to inflict such damage with their shitty actions and practices. [Have a look at the similarly awful action dished out by Humber NHS Foundation Trust to Sally Mays and her family.]

This week Verita 2 was published. The broader review into what happened to LB, moving beyond what happened in the unit. Slightly controversial really. It details a stream of failures by Sloven in their takeover activity of the Ridgeway Partnership in November 2012 but concludes LB died as an outcome of clinical staff actions rather than failings on the part of commissioner/Sloven managers. Wow. I’ve tried to read the final version twice and can’t get past p30 (the executive summary). It actually makes my eyeballs ache.

Chris Hatton has provided excellent commentary on this review, ‘Verita, a little less than the truth‘, which concludes;

I cannot reconcile in my head the evidence contained in this report and the conclusions it reaches – short of finding video evidence of Katrina Percy stalking the corridors of STATT with a piece of lead piping I doubt that any evidence would have been sufficient to make Verita reach a different conclusion.

George Julian has also documented why she can’t support the conclusions, looking at both process and content. Within moments of publication of Verita 2, ongoing disgruntlement around Verita’s relationship with NHS England and their ‘independence’ appeared on twitter. Just one example here which is pretty astonishing. Ho hum… This leaves an even bigger question mark for us over the independence of ‘independent reviews’ generally. Having read interview transcripts for Verita 1 and listened to evidence across the two weeks of the inquest, it’s hard to reconcile some of the findings (or unfindings) from the original review.

The secret Oxfordshire County Council review also continues to baffles me. Not just because of the secrecy with which it was conducted and circulated to various organisations a week or so before we got sniff of it, but also because it seems to be an exemplar of a non-independent ‘independent’ review. What’s going on here? Pretence? Delusion? Denial? I dunno. Any explanation is chilling.

All this underlines our concern about the newly introduced Independent Patient Safety Investigations Service (IPSIS) which seems to be headed by Mike Durkin of, er, NHS England. Membership of the expert advisory group is beyond depressing. Nothing like embracing a multicultural, diverse society. Nope. Nothing like it. It seems to be another Winterbourne View Joint Improvement/Bubb type endeavour. All talk and crap all action.

There shouldn’t be layers of ‘independence’. As simple as. Until this is recognised, there’s no point in puffery.

Oh, and for those of you wondering why the Mazars death review hasn’t seen the light of day yet (originally due to be published last summer), Sloven have challenged the review methodology. So it’s being independently validated. Another cracking example of the differing power families and NHS bods have. Despite the latter being responsible for death and the ongoing destruction of families.

It also hints at a level of independence rare in NHS related independent reviews. Here’s hoping Mazars will break the mould. Something needs to happen.

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The (blogging) mother blame

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Been sadly puzzling about my blog today. And the persistent theme of mother blame across LB’s inquest. It turns out the Band 6 nurse received a call from Sloven on the Saturday before LB was admitted warning him that LB may be admitted. Kind of astonishing given the community team (good old Oxfordshire County Council) hadn’t told us at that point that the unit existed. (Well they never told us actually). The nurse was also warned I wrote a blog which was critical of the Trust.

In his evidence, he said he thought the blog coloured the care LB received. A horribly distressing and harrowing thought. Both the community psychiatrist (Dr X) and unit psychiatrist (Dr Y) seem to dislike me with a chunky dose of intensity (Dr Y speaking on behalf of Dr X who didn’t give evidence). Other Sloven represented staff included (coached?) comments about how difficult I was in their witness statements. These weren’t sustained during the inquest.

“Dr Ryan called Dr X DR CRAPSHITE in her blog…” Dr Y’s barrister said with incredulity at one point. To an audible (and cheering) response from the public gallery. Sitting, pinned in a sort of clenched, beyond stressful hold, about a foot from this ‘cheery’ guy (as I was for the two weeks), I thought how LB would have forever after asked me with beaming delight, “Mum? Is she called Dr Crapshite, Mum?

Just before the inquest we were sent a copy of a letter written by a then senior commissioner at OCC to a disability activist. 4615 words of background, attack, excuse, vitriol and considerable billy bullshite. Both Dr Y’s evidence during the inquest and this letter present a picture of a difficult and ‘damaging’ mother who didn’t want her son home [howl] and staff terrified of appearing on partial and inaccurate blog pages. Dr X apparently refused to treat LB in the community because I was so toxic.

Wow. Wow.

I only met Dr Y a few times in meetings with several other people when LB was in the unit. I met Dr X once in January (briefly) with LB and Rich, and we had two telephone conversations. I never met the OCC bod. Of course we wanted LB home. I can be difficult at times. I was ‘difficult’ the Friday before LB’s admittance (on the phone to the crisis team) because I was terrified, desperate and was being told to contact an on call GP. An inappropriate suggestion given the circumstances. I also have a job, loving family and friends and interact, pretty cheerfully on the whole, in various settings with all sorts of people.

Katherine Runswick-Cole wrote an ace post about mother blame back in the summer for 107days of action. Most mothers of disabled children appear to experience this (toxic) blame at some point (several, numerous, sometimes continuous points) across their kid’s lives. Particularly when their children reach adulthood. I’m now wondering if you chuck in social media activity, the blame intensifies and becomes something else. Professionals seem ill equipped to deal with the (possibly public) scrutiny social media offers families. It’s experienced as unsettling, upsetting and disrupting. Sloven and OCC clearly remain unable to deal with (what was originally anonymised) scrutiny. Unable to embrace the immediacy of ongoing feedback, commentary and opportunity for engagement with services and support. Instead trying to hold onto archaic and outdated systems.

[Note to any local authority/NHS Trust… people/parents/family members will quite likely bite your hand off at the sniff of any genuine engagement/conversation around the provision, quality of support, potential future of people’s lives. Love typically underpins all these actions and responses.]

The defensive and ridiculous responses by senior professionals and officials during the inquest and over the past two and a half years, chills me to the core. That, in some way, these responses might have contributed to an obstruction of LB’s basic care and denial of our expertise/knowledge (while these pages were being monitored by the Trust) is so unspeakable, so hideous, so awful, my heart, body, brain, being freezes into something unreachable and unrecognisable.

There seems way too much focus on self interested concerns, protection, status, hierarchy and reputation among senior staff. With this blog as a central feature.

I’m not sure frontline staff were aware of or gave a shit about it.

An inquest album

With the proviso that the only thing LB was late for was a trip to the Oxford Bus Company on July 4 2013, here is the inquest in photos….

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the family room

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the evenings

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the media

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the journey

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the waiting

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the last day

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the relief

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RiO Fantastic and the Fit and Proper Person test

3 October 2013 John Stagg
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24 February 2014 Katrina Percy
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28 September 2015 Jennifer Dolman (by courier)
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2 October 2013 Jennifer Dolman (by courier)

More records not scanned onto RiO due to human error. Deeply sorry and will review processes… Can’t be arsed to photograph.

The final frontier

L1016083-2These last few weeks have been (particularly) battering. Sloven have revealed ‘their hand’ as documentation is circulated in advance of LB’s inquest. Despite glossy (meaningless) words in the Independent on Sunday, they continue to hold their (battle) ground.

Six members of staff now have separate legal representation. Six? Four of these are currently ‘properly interested parties’ along with Sloven and us. Interested parties can ask questions during the inquest. There will be eight sets of legal bods present. Wow. How will the tiny, wooden courtroom, described by John Lish, accommodate everyone?

I pretty much stopped working today. Sadly. It’s impossible to read the reports/interviews/documentation and continue to ‘work’. The emotional distress is too intense. We’ve been catapulted back to that space between LB’s death and his do. A space that defies words. This afternoon I slept. This morning we talked with a journalist. Re-living horror. And hearing further horror. Learning disabled people are simply treated with unchallenged (and accepted) contempt. Over and over again.

Our experience over the past two years can be summarised as harrowing grief, devastation, disbelief and destruction with repeated, unremitting and remorseless (hobnailed) booting by Sloven/OCC. Neither body has expressed a drop of positive action, candour or transparency. Fake apologies and dirty actions. Remarkable really.

In contrast, people have collectively recognised, rallied, raged and stepped up. A sort of maelstrom of creativity, colour, brightness, spontaneity, humour, life and humanity. Even more remarkable. [Thank goodness]

I hope we manage to retain some ‘sanity’ during the unfolding of this long awaited and deeply dreaded process. We’ve nothing to gain in many ways. LB is dead. That ain’t going to change. Answers? Within the boxes of documentation/reviews stacking up it’s pretty clear what happened and why. There’s no need for the inquest to be adversarial. With eight legal teams and the rows of ducks lined up, I can’t see it being anything else.

The biggest bundle in the bundle box

L1015872We received two weighty boxes of inquest bundles on Friday. (Bundles are lever arch files of well organised, numbered documents.) The ‘medical records’ bundle contains records we ain’t seen before. Despite requesting all of LB’s records in July 2013.

Our solicitor repeatedly requested missing records during those early months. Documents dribbled in. Peppered with ‘Oh yes we have!‘…and then  ‘Er, missing docs attached’ type responses. In February 2014 came the extraordinary realisation that none of the unit records we had were complete. We’d never received full copies of unit meeting minutes before or after LB died. Leaving us unaware that his seizure activity was disputed and dismissed.

Disputed… Dismissed???

[Howl.] [Can you imagine?]

Katrina Percy wrote to us in Feb 2014 apologising for this evidence of her piss poor leadership. A letter sent the day the first Verita report was published. [She didn’t mention the words piss poor or leadership but that’s what it was. The odd mistake may be ‘explained’ away as an error. When mistakes start stacking, up as they have and continue to do so, it can only be piss poor leadership.]

He died.

LB drowned.

In November 2014 the coroner sent us copies of the Initial Management Assessment (IMA) [I think that’s what it stands for] report and 72 hour SIRI document, neither of which we’d received. Over a year after LB died. More key documents slipping through the flakey Sloven disclosure net.

And yesterday, even more unseen footage…

We simply don’t understand how an NHS Trust can get away with such blatant disregard of candour and transparency. Without censure. We don’t understand how it’s acceptable that families have to, if they can scrape themselves off the floor long enough and have the resources to do so, police this stuff. We have excellent legal representation, costs covered by remarkable fundraising actions of all sorts of people and pro bono support.  We’ve also research skills that enable us to wade through this shite and identify omissions, crap and dishonesty. A lot of people don’t.

I’ve lost count of how many times we’ve (repeatedly) said These are public bodies… How can this be? How often we’ve been let down by people who must know the implications and consequences of their actions. They may have particular job titles/authority but they’re still human at the end of the day.  Just baffling. With an icey core.

Back to the bundles. No surprise that the biggest bundle in the bundle box is the ‘Sloven Policy bundle’. A remarkable 1030 pages of policies and procedures.

Nothing slipping through the net here of course. Nah. I won’t bother checking.

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Jury bundles, floor plans and photos

L1015667A full on few weeks. Writing witness statements for the coroner a hideous task. Reliving everything that happened. Again. He died? While having to discard what we now know [unit records/CQC inspections seared into my brain/eyelids]. So blinking painful. Then a week or so later, receiving Sloven witness statements. Piercingly painful, sometimes enraging reading.

More reading as both big reviews commissioned by NHS England around LB’s death pitched up. The broader Verita review building on their original review which found LB’s death preventable. And the Mazars review into deaths in Sloven’s mental health and learning disability provision since 2011. These have been circulated for ‘factual accuracy checking’ (just drips off my tongue these days) and won’t be published now until after LB’s inquest. Around 500 pages that must be generating agitational agitations at top Sloven towers level. As it fucking should.

Yesterday was the fourth pre-inquest review hearing at Oxford County Hall. My Life My Choice turned up in force. It makes a difference to see family/ friends/campaigners in the public gallery. Sort of counteracting the apparent ease with which LB’s life seemed to be treated in a ‘deleted/trash emptied’ way. Like so many other people. George Julian brilliantly tweeted much of what was discussed on a new dedicated campaign account; LB’s inquest.

It was just incredibly sad. I don’t know. Maybe more so than the previous three meetings (if that’s possible). Earlier hearings involved thrashing out issues around whether or not the inquest should be an Article 2 inquest with a jury. This related to LB’s human rights – something he was always so (rightly) hot on – under the European Convention on Human Rights. How the state has a duty to protect life.

Back in the day, these were important points to us and we were worried Sloven would derail them. Yesterday it was confirmed that LB’s inquest will start on October 5th for up to two weeks. Discussion turned to witnesses, jury bundles, floor plans and photos.

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Preparing for your child’s inquest

    • Is possibly one of the saddest tasks ever
    • Truth, justice and accountability fought for in a process with unimaginable physical and emotional impact
    • Enormous financial cost
    • And so far from guaranteed

Don’t ever tell me this is an inquisitorial process.

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Fordingbridge, Cillit Bang and eight notes

[The first of a (maybe one, a few or too many) detailed, dull, note heavy, contextual posts leading up to LB’s inquest. Sorry. It’s too important not to document...]

I’m pretty sure I’ve previously mentioned the original Verita investigation (V2008) into the beyond crap services provided at Fordingbridge Hospital in 2007/8 (rehabilitation and palliative care services).  Fordingbridge Hospital was run by the Hampshire Primary Care Trust which eventually became Southern Health NHS Foundation Trust (Sloven), absorbing Hampshire Community Health Care services (HCHC). [I know. Layers of tedious detail. Stick with it if you can bear too? to? to eurgh.]

[Note 1. Mike Petter, Hampshire PCT Non Exec Director during V2008, constant non exec board member across the years, is now Sloven board chair (announced August 2015).] 

The V2008 report can be read, heavily redacted, here (courtesy of the Daily Echo). Sue Harriman, then Director of Clinical Excellence, originally produced a summary document – the Fordingbridge public paper – in lieu of publication of the full report. [Note 2. Sue Harriman was acting Sloven CEO when LB died.] The full report couldn’t be published apparently because it included names of patients and staff. The Fordingbridge public paper, which reduced V2008 from 84 pages to 7, largely summarises the sterling work Hampshire PCT had conducted to improve the Fordingbridge service in the wake of the (almost) scandal. Recommendations from V2008 were included as an appendix. The paper concludes; 

A full review of all HCHC/Care Services inpatient facilities across Hampshire was conducted based on the findings from this investigation. The HCHC /Care Services Board was assured that the issues identified at Fordingbridge were not replicated elsewhere.

However, a Director-led strategic ‘Community Hospitals Action Plan’ was established to ensure our patients received the best possible experience with optimal outcomes.”

So the Hampshire Community Health Care services were all good apart from Fordingbridge and a strategic plan covered all other bases. A sort of Cillit Bang type approach to the emergence of failing services. An approach involving the following steps: i) Neutralise criticism by focusing on actions taken. ii) Isolate ‘germs’ and make it clear they are contained. iii) Add a layer of something wordy/fanciful to oil the ‘moving on’

[Note 3. iii) can often involve bringing in outside agencies at considerable expense (to the taxpayer) adding more oil/speed to ‘moving on’ talk.]

There are 29 recommendations in V2008. [Note 4. The Fordingbridge Public Paper lists 28. 5. At the time of V2008, Katrina Percy, current Sloven CEO, was managing director of providing organisations. Not sure what this means. 6. Sandra Grant, current Sloven director of people and communications, was human resources director.]

Of the 28 or 29 recommendations in V2008 over half – R5 (staff training), R6 (patient information/involvement), R8-10 (care planning), R11 (environment), R14-16 (dignity and respect), R17 (staffing levels/continuity of care), R22-25/29 (leadership) – easily ticked fail boxes in the subsequent series of CQC inspections across Sloven’s Oxfordshire provision that took place in 2013/14.

This stuff just wasn’t new to them.

Acquiring a whole new set of services in Oxfordshire in their (potentially lucrative) takeover of Ridgeway services four years after their Fordingbridge experience and no learning was drawn on to make sure these services were run properly. Despite the continuity of senior staff involved. Maybe NHS reorganisation give (senior) staff ‘get out of jail free cards’? Allowing them to toss aside existing knowledge while holding onto inflated salaries, status and sturdy, award holding, shelves.

Verita pinged up again in Sloven history, investigating crap provision after LB’s death in 2013. An investigation focusing on the unit LB died in; the Short Term Assessment and Treatment Unit (STATT) based at Slade House in Oxford. Sloven tried to avoid publication of V2014 using the same tactics they’d used with V2008. They don’t forget some things. Three weeks before V2014 was due to be published, they announced they’d publish a summary of the report on their website. To protect staff, protect LB’s confidentiality, stop the identification of staff and ensure the continuing ‘free and frank’ accounts of staff in such investigations. More trumped up rubbish.  

V2014 was eventually published with the names and job titles of staff redacted.

Research funding is dependent on demonstrating that you understand and are able to evaluate and summarise what is already known about a particular topic. That you will draw on this knowledge throughout the ensuing research. And that this research will have impact. Academic research isn’t without criticism. Quite the opposite. But I’m struck by how limited the lack dot joining is in health and social care reviews/investigations. Rich Watts here details another (stark) example of this.

[Note 7. Rich regularly took the kids camping in the New Forest when they were young. One trip I remember, we went to Fordingbridge and the kids chose a book each in a small, local bookshop. It was the first time LB (still in junior school) surprised us with his book choice. It was something like a detailed log of types of Land Rovers in southern England. In black and white. With a lot of technical specification tables, chassis numbers and little else. It turned out to be the first in a series of nonfiction book choices that included David Bowie’s London spaces, the Red Cross First Aid manual, concurrent editions of the Yellow Pages (a cheap gig), the Eddie Stobart Story and much historical bus and London stuff. LB was never one for fiction.]