One thing that seriously naffs me off, is when people talk about parents of disabled children experiencing bereavement. I think it’s careless, pat, unreflective and unhelpful. Some may, of course. Fair enough. But I suspect an awful lot don’t.
I think the everyday rules and sense of order, predictability and certainty disappear when you find out you’ve landed a speshy. These rules/order revolve around ‘mainstream’ lives, not the lives of families with eel children. And I think there is a sadness. A deep sadness, that is made up of all sorts of different things. Anyway, this got me thinking about tears and how much I’ve cried since LB was born.