Choice, cake and a chat group

ryan5-306A couple of weeks ago, a support group for unit patients was set up. LB received an invitation to attend this group which was to be held on the Friday afternoon in the living room. That evening when I visited, I asked the staff member how the group had gone. Bit of a disaster, it turned out; everyone chose not to attend.

The choice agenda in practice. Kind of hilarious.

The following week, the group ran again, this time with the addition of cake. LB turned up, ate cake and chatted. A lot apparently. Of both.

The group is now called the Cake and Chat group. Well, for LB anyway. I’m not a big jargon person (I hope), but I think this is probably a rocking example of person-centred thinking.

 

 

Choice, Bond and bus tickets

Rang the Unit this morning to see if LB wanted to come to town with us and have some nosh out. He’d been to the farm on Friday and had been quite chilled over the weekend.

“Maybe. Maybe not,” was the answer. This means no. I rang back a bit later to see if he wanted us to get him anything.

“No, thank you,” he said to the staff member relaying the question.

“Can you ask him if he wants a t-shirt or a dvd, or anything?”

The answer was “DVD please.”

Rich, Tom and I went into town. Tom started chatting about when we’d gone to watch Skyfall with LB. I’d forgotten, but Tom remembered how LB had sat patiently in the dark waiting for the bright daylight fight scenes so he could read his bus ticket. Hilarious. Kind of.

There’s something here about choice and constraint. But also about difference and tensions around making sense of our lives and the social world we live in. I still think of LB as an unlikely ethnographer, but that doesn’t help us understand how he makes sense of his life. This remains a mystery really.

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Pick n’ mix on the 280

Not a good day for LB related reasons. But caught the 280 home from work and had the following encounter with a geezer dude. Kind of cheering…

“I went to Smithers ya’know? Smithers?”
“Eh?”
W.H.Smiths?”
“Ah, yeah.. W.H.Smiths…”
“Yeah. I picked up a newspaper, tucked it under my arm. £2.60 it was. £2.60. I thought I’m gonna walk out with this. Without paying like.”
“Ah.”
“Yeah. But then I saw the man with sweets and I thought YES! I want some sweets! So I got some and thought well I’ll pay for the sweets but then walk out with the paper under my arm… You know, as if I’d already paid for it…? But then I thought Don’t.be.so.childish. Do you know what I mean??? So I paid for the paper too.”
“Cool.”
“Do you want a sweet? There’s jelly beans and all sorts…”
“Nah, I’m fine thanks…”
“Ahhhh. Fuck!! Dropped em! [….] I’m just gonna eat them anyway. Well these ones. Not that one. Look. It’s rolled in some squishy stuff. Yuk. Look at it..  I’ll eat these though. I love jelly beans.”
“Yeah, me too…”
“Funny. Jelly beans still taste good, but other sweets from when I was a kid. They just don’t taste so good now. They put other stuff in them I think. Not nice. When I was a kid, I’d eat some sweets then do twenty laps of the room. Like round and round and round! My mum used to say ‘You ain’t having any more sweets!’ Sent me hyper they did. But I like to get sweets now and again. And like scoff em all.”
“Ha! Me too…!”
“Yeah! Maybe I need that energy rush.. Every now and again. I dunno…”
“Maybe.. Nice to meet you, I’m getting off now…”
“Well a happy Christmas to you missus!! And don’t eat too much chocolate!”

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A fledgling plan

Ok. I’ve been thinking about this for a while now. But only in short bursts. I thought if I start to document these thoughts, it may a) give me a kick up the backside to explore it more fully b) contribute to discussion/different ways of engaging with young learning disabled people and c) maybe get some tips, experiences and links.

So, LB is 18 in a few weeks. He is very funny, hard working and sensible (in an unusual way) with some serious interests around transport, recycling and justice. “Transition” so far has been pretty shite as I’ve documented. The future is not looking bright.

The facts as I’ve gleaned them (not easy); He has one more full year at school after this one. After that, he will be entitled to direct payments to create support for him.  What this means is not clear. There’s a chance of a further year at a local college to learn (more) life skills. Given that his sixth form are currently doing a cracking full on job of teaching life skills, I’m not sure that there is much point in an additional year. Well other than to occupy his time. After that, it’s day centres (shudder) or a life of being taken into town to go to the cinema, bowling or hanging out at home with a paid carer.

The fledgling plan..

To set up a small social enterprise scheme; get a loan, buy a small van, a mobile industrial shredder, employ a co-ordinator and run an odd job business. The odd jobbers. The idea is to draw on the strengths of LB and other young people and celebrate diversity/eccentricity. LB is an attention to detail kind of dude when pointed in the right direction and encouraged to stay there. Other young people I know have an infectious joy in meeting people (though not always joyful to their parents) and interacting, strength, humour, an ability to hang out cheerfully and other skills. The plan is to create a community presence where the odd jobbers become known about locally. People, and local businesses, enjoy the service they offer on a social, as well as financial, level. Driving round, collecting shredding, or bits for the dump, small deliveries and so on. Creating employment (for however many hours a week) and the associated benefits (productivity, achievement, activity, purpose, structure, pay and a social life) which is priceless.

There are enterprises that are doing similar type work across the country. I was pointed in the direction of Props who offer brilliant opportunities for young people in the Bristol area. But there are layers of hoops and bureaucracy to negotiate as local authorities interpret what direct payments can be spent on very differently. We had a taste of this when LB went on a “summer holiday” with a few other young men, funded through direct payments, only to come back with an extensive learning log. Oxfordshire county council insist learning outcomes are attached to funding. Props have had to create an accredited course for their enterprise. Choice and autonomy within a personalisation agenda? Forget it in practice.

These are early thoughts. It may be a vague, unattainable, undoable daydream. [Like my decluttering intentions..cough cough]. I’ve no idea how it could work in practice. But it feels better to think in terms of action. And involvement. Rather than just letting things pass by.

The big ‘got’ question

Oh dear. I suspect this is where my whimsical, cheerful little blog may get a teensy bit controversial (again).  I’ll try and find a nice, fluffy photo for the end to soothe any tensions raised. So the question is; can you ask a disabled person “What have you got?” Someone I know was asked this question the other day.  “EEEEK” “Shit! That’s outrageous!” “WTF??????” Were the sort of responses from other people when they heard (with a bit of swear embellishment). The question asker was an adult.

I’ve been thinking about this and am a bit undecided.  Well I sort of do know what I think, but I know what I think flies in the face of a lot of thinking, conceptualising and theorising about disability.

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