Useless eaters, human ballast and empty husks…

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Bit of a convoluted ramble tonight. Sorry, but hopefully it makes some sense.

James Titcombe found out this week that Morecambe Bay hospital paid £42,123 in legal representation and attendance of communication staff at his son, Joshua’s, inquest. Early this year, My Life My Choice (and Michael Buchanan) found out that Sloven spent £318,121.20 on legal representation at LB’s inquest. It’s not clear if this figure includes preparation for the four pre-inquest review hearings. It doesn’t include the costs of Sloven staff attending the inquest. [It became a daily activity to spot Sloven (and Oxfordshire County Council, NHS England and Oxford Clinical Commissioning Group) bods loitering around the public gallery. Lacking the lanyards typically worn, they were identified by furtive awkwardness.]

This cost could only have been spent in an attempt to limit damage to Sloven’s reputation. What happened to LB is undisputed. Sloven said back in February 2014 they accepted the findings of the first Verita report which found that his death was preventable. Why would they need (external) legal representation at an inquest which is supposed to establish what happened rather than attribute blame?

How did we move from this (clearly fake) position in Feb 2014 to a space in which eight barristers (and accompanying solicitors) jostled for table space at the front of the courtroom? Sloven were culling staff (or ex-staff) from their legal umbrella pretty much up to the start of the inquest. But bizarrely included in the dosh spent is £90,000 on legal fees for staff they didn’t represent. Eh?

Total absurdity.

Sloven’s response was clearly to chuck unlimited dosh at trying to grab a genie that had well and truly left the bottle. A social media related genie.  Mike Petter, board chair and member of the Sloven leadership trinity, told My Life My Choice:

petter shite

Jaw dropping duplicity. Like most (all?) Foundation Trusts Sloven have an in house legal team. Unlike families who are catapulted into a space of abject horror and distress, usually with little or no legal knowledge or support. Petter doesn’t explain why Sloven brought in an external solicitor and barrister. Or why they contributed to the costs of staff members they didn’t represent. (Or why they didn’t make this clear at the beginning of the inquest when we were led to believe that there were six other independently represented Interested Persons…)

I bumped into a lovely neighbour earlier. She’s been a teaching assistant for over 30 years at the junior school Rosie and Tom went to and follows the campaign.

“All those hundreds of people”, she said. “And they didn’t know…”

I think ‘they’ did know. How could they not know? They knew but didn’t think it was important that (certain) people were dying prematurely. I’m reading Neurotribes at the mo. The go to book about autism by Steve Silberman. Earlier today I read this;

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Life unworthy of life... Nearly a 100 years ago Hoche and Binding produced a simple and effective framework for understanding contemporary provision of health and social care for learning disabled people in the UK.

Wow.

Just got to make sense of how a public body could squander over £300,000 on LB’s inquest now…

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What the foodles?

Rich sent me a link to this story this afternoon. The Star Wars production company, Foodles, is being prosecuted on four criminal charges by the HSE for an incident in which Harrison Ford broke his leg. A year after LB died. He died.

[Howl].

Right now

I weep.

I don’t understand how LB is dead. [Dead??]

I fucking despair at the non(sensical) action by Department of Health, Monitor, NHS England, CQC, OCC and the various CCGs.

Before and after LB died.

Before and after publication of the Mazars review.

I despise Sloven’s consistently shite practices, fakery and arrogance.

The pointlessness of Mencap.

I don’t understand how LB is dead. He drowned. In specialist NHS provision. No accountability. Nothing.

I just don’t get it.

 

What if Sloven actually learned lessons?

News today of another inquest in which the coroner identified failings in the ‘care’ provided to Louise Locke by Sloven. This inquest was delayed a few months ago after the documentation provided by Sloven was incomplete. Classic Sloven incompetence (or worse) that generates more pain. Nothing like having your mum’s inquest bumped to the new year because the Trust who couldn’t look after her in life continue to fail her in death. Nope. Nothing like it.

Anyway, Lesley Stevens was back on inquest duty. I can’t imagine how she gets out of bed of a morning given the awfulness she must sit through and defend on such a regular basis. Still, she gave the typical Sloven corporate speak end of inquest statement about lesson learning and yadiya blah bleurghdy bleurgh stuff. I’ve pulled together a table detailing a selection of these post inquest statements taken from newspaper coverage over the past two years or so. (And it’s probably worth another butchers (and a weep) at Rich Watt’s post about lesson learning from two years ago now.)

Learning lessons

What’s interesting here is both the emphatic insistence that lessons are learned and the immediacy with which Sloven claim to act; Immediately after her death; We have already undertaken a number of actions. Bearing in mind it takes months or typically years for inquests to take place these are strong claims indeedy. I remember Lesley Stevens talking the coroner and jury through the Sloven (apparently already) implemented improvements off the back of LB’s death at the end of his inquest. Fran was sitting at the back of the public gallery gently prevented by loving mates from repeatedly shouting out ‘That ain’t true. That’s not happening…’

What have they learned?

So what have they learned? Clearly very little. You can distill down the various shiny lists produced for the various coroners to a small number of categories; family involvement (red), staff training/risk assessments (blue), record keeping (mauve), care coordination and communication (green), clinical leadership (orange) and better decision making processes (brown). There are no new and dramatic lessons being learned here. Quite the opposite. Tired old non lessons that limply lie next to the dominant and empty vital and immediate action claims.

What will this achieve?

Then finally. The transformation claims. Less evident in the media coverage (thank goodness). If Sloven want a quick win from this brief analysis it’s ditch the big claims of improvement. Awkward. Embarrassing and fallacious.

sloven inquest commentary

 

What does all this mean? A few thoughts:

  • Sloven’s readiness to use loose phrases and recycled statements that bear no resemblance to proper action and accountability demonstrates their complete insincerity in actually learning or changing stuff.
  • The rote mechanical reaction and vacuous use of language needs to be challenged by the Department of Health, Monitor, the CQC, NHS England, the Clinical Commissioning Groups and the media, and held up to repeated and close scrutiny.
  • The fact they clearly are learning nothing from these preventable deaths demands urgent and effective attention. Hannah Groves died over three years ago and Sloven are still learning that they need to involve families and carers. Louise Locke’s inquest found that care coordination across agencies was still failing patients. Despite learning this at various points over the years.
  • And finally the space none of us really want to enter but has to be confronted. If Sloven had actually learned lessons, how many people would still be alive? Fuckers.

We’ve started to regularly discuss the futility of repeatedly making this shite visible only for it to be ignored. Busker John called round earlier and Rich said two or three times ‘Hey, tell John about the latest this, that and the other..’ Each strand of telling was worse and worse. Mencap gate. Louise Locke’s inquest.The latest (not yet public) whistleblowing detail. Harrowing stuff.

‘Blimey’, I said. ‘Imagine coming round and us just saying something like ‘Wow. Lovely sunshine outside…’

‘But it never stops,’ replied Busker J. ‘There’s always something new…’

Yep. And nothing ever happens.

Sloven and the snow sweepers

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I went to Helsinki this weekend. To catch up with my mate Ulla and her cheeky kidlets. The sea was frozen. There was a blizzard. And on the rooftops workers shovelled snow. Protecting pedestrians from risk of ice falls.

It was fun. It was blooming cold. A different landscape. Frozen sea. Frozen sea. Ice bucket lanterns. Life organised in negotiation/engagement with extreme weather conditions.

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In a blink I was back on the coach to Oxford. No snow. My phone working again. A text from Agent T alerting me to papers for the Sloven Governors meeting. Over a hundred pages. I half skimmed them, blearily peering out of the window at the passing motorway. Dull. Damp. Dark. No snow.

Among the jargon filled pages was a statement from a Mencap appointed governor. An extraordinary statement that went unchallenged at the time and was published in full in the minutes (p18). We should take comfort from the gap in training LB’s death has made visible and this could be an opportunity for Sloven to fill this gap. Followed by yet another non apology from the Board chair.

On behalf of the Trust, Mike apologised for the failings in care that had led to Connor’s death”.

I don’t know. I don’t know if Sloven are just uber shite or whether this level of unreflective, stupid, ill formed, half arsed minuted (and agreed?) commentary is typical to most Trusts. I hope the former because if it is endemic we are all fucked.

Meanwhile, a hastily (half) convened gaggle of Monitor/CQC bods with clipboards pitched up to vaguely look at the Sloven roof tops after publication of the Mazars review. Half wagging fingers at teetering snow. Empty gesturing. Missing the point. Deliberately missing the point. Which is almost too awful to contemplate…

It really doesn’t matter that certain people die [die?] early.

[Apparently three Sloven governors resigned at their meeting yesterday. And there is more whistleblowing afoot. Thank you].

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Experiencing Mazars, fuzzy boundaries and rank closing

I was working through the open docs on my computer yesterday evening and came across a PDF called 2642_001. It was one of the numerous docs we received the week before LB’s inquest began last October last year. At that point (intense stress, distress, fear and anxiety) I skimmed through them.

I couldn’t remember this particular document. Discovered by a Sloven IT bod, buried in the dark and dank basement of the RiO system. RiO, of course, was the focus of many a boring and repetitive moment during LB’s inquest. [I’ve heard on the leak line that Sloven are currently trialling a new version of RiO… How much money, time (and lives) have been lost through such a clunky and craphole piece of software?]

LB was listed as living in Tadley, Hants. In stark contrast to the scrutiny Sloven placed on the Mazars review. Accuracy aint necessary in generating learning disabled patients records. Address? The moon. Diagnosis? Anything and everything to do with early (natural) death inevitable. His discharge date was 4.7.13 and discharge method ‘6-Client deceased’. [Howl].

Someone we’ve not heard of before ‘diagnosed’ LB with various things in this document. The speed of ‘cover up and protect’ activity very apparent here. Like the ‘Mother’s blog briefing‘ circulated within 24 hours of LB’s death.

death diagnosis

Astonishing for so many reasons. But not surprising in light of the Mazars findings. Careless reporting of and burying unexpected deaths. Constructing ‘best case scenarios’ (i.e. nothing to see here). The Sloven way. While raking in vast sums of money to ‘provide’ care on a weekly basis. The cost of LB’s stay in STATT was around £3500 per week. PDF 2642_001 details he received 1 of a possible 40 specialist assessments. The Incident Management Assessment (IMA) we eventually received via the coroner [Sloven have right old sticky paws when it comes to disclosing any information] states that LB’s seizures were rare and nocturnal.

Fabrication. Fabrication. Fabrication.

Reputation. Reputation. Reputation.

The Mazars review

There has been no real action taken in response to the Mazars findings. Publication just before Christmas was cynically timed to facilitate deep burial of bad news. There’s no other explanation. The findings clearly present failure at Board level, a carelessness and disregard for particular lives and an unknown number of deaths which could have been prevented if earlier deaths had been investigated. A breach of human rights on an unprecedented scale in NHS provision. 

According to the Monitor CEO who I met very briefly with this week if the CQC flag up any issues on their unannounced inspection in the next two weeks [I know] they will consider action. In the meantime they will stick an Improvement Director in Sloven towers. There’s no other information about this Improvement Director.

Sloven meanwhile appointed an ex-Monitor Regional Director to their board this month. Fuzzy boundaries and all that. The stench from sordid and sneaky ‘deals’ seemingly conducted behind closed doors so depressing. I think one of the resounding sadnesses in the Justice shed is how much this experience has exposed (for us) the level of collusion, stitch up and corruption that operates (without check) within these publicly funded bodies.

We received a cheeky copy of Slovens internal briefing about the ‘unannounced’ CQC inspection last week [thank you]. This briefing can be summarised as ‘get the posters up, all hands on deck, persuade staff not to take annual leave till Feb and crank up the quality of death reporting which is still rubbish’. Farcical fakery and nonsense.

We’ve now had 2.5 years of Sloven dealings. Setting aside our personal experiences, documented at length on these pages, Sloven are clearly a ship with shite leadership at the helm. Board member performance (apart from some non execs) at the extraordinary board meeting on Monday was truly excruciating. The CEO, whose only connection to leadership seems to be the number of times she mentions the word, repeatedly deferred to the Chief Operating Officer who cooed beside her awkwardly. When asked directly how he felt about being cosied up with the leadership trinity of Percy, Petter and Grant, he broke into an overly long speech which included the word ‘proud’ so many times I expected the Dambusters film score to burst out from some hidden speaker in the cramped and heated room.

You could argue (and I’m sure that the Monitor/CQC/NHS England trinity have) that being faced with a room full of raging members of the public after publication of an incredibly damning report can only be unsettling. But there’s no evidence of effective Sloven leadership in any setting/context. A focus on expensive nonsense like the ‘Going Viral’ programme; an inability to see that they are spending money on crap consultancy;  minutes and quality and annual accounts you can drive an Eddie Stobart truck through;   recorded performances online that are unconvincing... The list is endless.

A favourite in the Justice shed – Woman on all Fours – is just one example of this:

Humour aside. It’s clear that people are dying early and unexpectedly in this organisation. Denied the opportunity to lead everyday lives. Doing stuff that other people just do.

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Sloven routinely ignore and cover up the deaths of certain people. We know this. And this is apparently acceptable across NHS England, Monitor and the CQC.  Perhaps it’s time for some honesty (candour and transparency) across these publicly funded bodies. Either have the guts to say that some lives aren’t important and if these people die early, that’s fine.

Or fucking do something about it.

Sloven briefings and bleatings

Blimey. Sloven don’t half love a briefing. Their briefing to NHS England about the Mazars review found its way to us earlier this week. They commissioned an independent review into (specific bits of) the Mazars review of their own practices of responding to particular deaths. Paid for by public money.

To distract myself from debilitating incredulity, I googled ‘what (the fuck) is a ‘briefing?’ A briefing basically identifies a problem and offers a rationale for a solution. Not rocket science.

Sloven’s ‘briefings’ are pretty disturbing and flaky. The now infamous Background briefing on mother’s blog circulated the day after LB died. [Howl]. Still packing a punch spiked with scotch bonnet chillies and rusty nails over two years on. [He died… He drowned in a bath. In ‘specialist’ NHS provision…?] The problem: a publicly documented account of love, health and social care failures and worse. The solution? The briefing ‘may help in shaping a tailored media response to the incident’.

An erasure of LB as a person. And so much more.

Then there was the David Nicholson/Monitor briefing (March 2014). The problem: that bloody mother (again), pesky #JusticeforLB campaigners and social media high jinks causing reputational damage. The solution? Discredit, bleat and block.

This latest briefing. The problem: an independent [yep, independent] review uncovering scandalous findings and clear evidence of eugenic/dehumanising practices. The solution? Discredit the review.

Chris Hatton has written about the Sloven attempts to discredit the Mazars review here. This morning we flagged up that the helpline on Sloven’s website for families who may be affected by the review no longer existed. As ever, their energies and attention focused solely on their reputation. Families? Forget it.

A clunky and late revision of their statement eventually appeared later today:

Untitled 3NHS England continue to delay publication. Relentlessly. It’s looking likely it will be pushed beyond  the closing of the House of Commons on Thursday as ‘it needs to be clear about its messages as possible’. Wow. Quite some jostling for the winner of the scumfuckery public sector bastard of the year award going on here.

Here’s the latest briefing in full.

briefing 1
briefing 2
briefing 3

briefing page 4
briefing 4
briefing 6

 

 

 

Doubters, deniers and belieSHers

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Helter skelter times. With the emergence of the key findings of the Mazars review via the BBC this week. Having banged on relentlessly for over two years now, we feel some relief that a wider set of people may be gaining insight into the improbably inappropriate, incompetent and deeply arrogant actions of Katrina Percy (KP), the CEO of Southern Health NHS Foundation Trust (Sloven), and her merry (board of) wo/men.

Sloven have demonstrated tooth enamel removing disregard for the content of one of the most scandalous reviews to be (almost) published this century. A review that has generated what Graham Shaw has rightly described as ‘a deeply-troubling episode in the history of the NHS’.

As we followed the painfully slow unravelling of the top layers of Sloven ‘leadership’ in the last few days, including a late night statement from KP that made me wonder if some cheeky chapster had hacked the ITV website, doubters and deniers started to appear on twitter. [And in person, as Mark Neary experienced.]

For some reason the Health Service Journal (HSJ) led a paternalistic backlash. Cautioning against anyone paying too much attention to this half baked and strongly challenged review. This may be because the HSJ, like us, had been leaked a copy of the independent review Sloven had commissioned to examine the methodology of the (independent) review into their practices.

[At this stage, you may need a moment or two to;

  1. Scratch your head with incredulity
  2. Laugh hysterically
  3. Get a cold beer from the fridge to cool down your forehead
  4. Weep at the bottomless pit of money Sloven can seemingly throw at wriggling out of ‘tricky situations’
  5. Perform some other action to make this completely inappropriate action somehow digestible…]

Sloven commissioned Professor Mohammed* to do a review focusing largely on the ‘outlier’ question.  He strongly critiqued the Mazars ‘at best unsatisfactory and, at worst, incompetent’ analysis. Cripes. NHS England had already commissioned an academic to review the full methodology. Their review (of the review) asked for a fuller account of the methods used but otherwise gave it a clean bill of health.

The second group, the belieSHers, without knowing the content of Prof M’s review, believe so strongly in Sloven’s credibility (as an NHS Foundation Trust?) that the ITV statement was all they needed. Sloven said the findings were wrong. There. Sorted. And stop this sensationalist reporting without foundation. Tsk.

Overlapping this group were the disbelievers, including Roy Lilley who drew on his own ‘intelligence’ to suggest strongly that only sections of the half finished review had been leaked by a disaffected Sloven employee. Incredulity was also expressed at the commissioning of Mazars by NHS England. An audit company, FFS. I mean why not commission an independent outfit who understand the healthcare world. Like, er, Verita, I assume… The disbelievers were distinct from the belieSHers as they snarled at us to publish the review. They at least seemed prepared to accept that a robust review existed.

Finally, there were the conspiracists. Jezza Hunt had orchestrated the leaking of this review as part of his wider privatisation plot. How could there possibly be so much news coverage and an Urgent Question in the Commons on such an issue, in such a short space of time? Wow. Like Sloven, a complete disregard for the content of the report.

These positions were contradictory, sometimes extreme and ill informed. For once we were able to step back and (almost) park the swearing, rage and frustration we’ve experienced and articulated for over two years since LB died. [Howl]. And calmly reply, over and over and over again;

The review is robust. It is complete. We have a final copy. We don’t know why it still isn’t published.
 

The trouble is, the responses above (including Sloven’s position) make visible the typical excusing and acceptance, even expectation, of shortened lives for some people. They point to accepted processes and practices of a publicly funded health and social care system that consistently discriminates against and excludes certain ‘types’ of people. And when these people die ‘unexpectedly’, a discounting of their deaths.

That there were three days of headline news and sessions in both the House of Commons and Lords on the back of the headline findings of a leaked report, suggests that that the findings of this review are hugely important to the wider public. Outside of the doubters, deniers and belieSHers who, well what do you know… are all firmly embedded within the healthcare world.

The review will be published this week.

*Of Mid Staffs fameimage

 

What a difference a day makes…

Blimey. A right old trudge across pain filled terrain. Dotted with regular state sanctioned batterings. For over two years. Patches, drops and buckets of brilliance along the way in the shape of #JusticeforLB. Thank goodness.

And then yesterday. The Mazars death review leaked to the BBC. Less than 24 hours later a 35 minute debate in the House of Commons. Heidi Alexander, Shadow Health Minister, putting an Urgent Question to Jeremy Hunt. Love her. He ducked some answers and answered some unasked questions. The review methodology was sorted.

Sloven trended on twitter. Katrina Percy and senior colleagues went into hiding. NHS England left an out of office ‘publication by Christmas’ message. More than a 1000 families left hanging.

We’ve lived with the Mazars findings for a few months now. A report that, once read, leaves you in a space in which sense making is impossible. This is clear from the response to the tiny slice of it offered by Michael Buchanan’s excellent coverage. Debates in both the Commons and Lords earlier today demonstrate remarkable and unusual cross party concern, horror and engagement.

Sloven’s entrenched and ludicrous ‘it wasn’t us guv’ position compounds the seriousness of the findings.

BBC Breakfast coverage this morning included a video clip of LB, aged around 6, tangled up in his duvet. Peeking, cheeking and oozing happiness.

We’ve chatted a lot about what he would think about these latest developments. As we do. He’d have probably found the media coverage and parliamentary debates fascinating and important. Repeatedly (and I mean repeatedly) asking ‘Has the Mazars review been published, mum?’ and ‘Why not, mum?’

I don’t know what I’d have said to him, back in the day. I’d have probably dredged up some explanation/excuse and fobbed him off. Explained the delay away.

Now I’d say ‘Because they can and they do.’

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Slumber, absurdities and a tumbleweed collective

The independent Mazars death review, just by way of a speedy update, was commissioned by NHS England to examine all deaths in Sloven’s learning disability/mental health provision from 2011-2015. The review is in apparently indefinite quarantine by NHS England under challenge by pretty much everyone and their dog.

[Well apart from Chunky Stan. Who, asleep on my feet is pouring his energies into extreme comfort using an almost winning combo of warm fur, being Chunky Stan and a snooze mechanism involving occasional deep/contented sighing…]

It turns out that Sloven made nearly 300 challenges/criticisms to the original draft of the Mazars (independent) review. Wow. 300 challenges? Unprecedented focus/scrutiny by the Sloves who, a week or so after LB’s death, publicly announced he died of natural causes and circulated a briefing about the risk my blog posed to their reputation

Sloven

Sloven Board minutes. 23.7.13

[Someone recently said that Sloven made a big error in their early responses to LB’s death. Sort of suggesting the pesky mess our meddling campaign has uncovered could have been left untouched if Sloven had behaved better. I’m not sure how to begin to make sense of this so I’ll stick to what we know for now.]

Publication of the Mazars death review was delayed on the basis of Sloven’s challenge and an academic review into the independent review methodology was commissioned by NHS England. [I know]. NHS England also got an internal dataset expert to review the, er, data. [I know]. Neither reviews of the review have turned up anything changing the findings/recommendations of the original report beyond the odd tweaking.

We found out this morning that Sloven have commissioned their own review into the review. Hahahahahahaha. No. Stoppit. You what?…. Taking marking your own homework in the brave new NHS (fake) world of transparency and candour to unprecedented lows. Really??

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This postcard on our fridge repeatedly catches my eye as I reach for wine milk. We’re in a space of absurdities. A space unrecognised by Sloven, Oxfordshire County Council, NHS England, the Care Quality Commission, Monitor or the Department of Health. Evidenced by silence and in(non)action. A tumbleweed collective.

Erving Goffman talked about how much work is involved in awakening people to their true interests because their sleep is very deep.

Two and a half years since LB’s death and we clearly ain’t disturbing the slumber of anyone with any power to do anything. We can continue to try to ground the absurd though. Ground it in the human.

Here’s LB. Keeping watch on a Scottish holiday. No hint there may be trouble ahead. And why would/should he?
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