‘That letter’ and non-standard mothering

So here’s the gig. LB is 18. Increasingly unhappy at school. Deteriorating in emotional well-being. The space for him to be happy seems to be steadily narrowing. Like those rooms on Tomb Raider with moving walls, or the ledge Batman stands on.

We work full time. Luckily with flexible employees/jobs that allow Rich to leave work at 1pm to collect LB from a residential school trip in Devon when it goes tits up, or one of us to be home at 3.15pm most of the week, with some help from family. This also means that we spend quite a lot of the weekend working.

We have a care manager. Or we did, briefly, until she organised the 2 hours of direct payments five days a week to cover after school ‘adult child care’ and discharged us indefinitely. ‘Successful at panel*’, she called it. Trouble is, ‘adult child care’ ain’t readily available. And two hours after school doesn’t solve the increasing problem LB has coping with school.

Things are not going well.

I met with a good friend this week who has a 25 year old daughter in a residential setting. She always amuses me with her refreshing, no nonsense, cut through bullshit, type approach to her and her daughter’s social care experiences (which have been up and down). This time she turned her focus onto LB. It was time to write ‘that letter’, she said, as we noshed on the early evening menu and glugged house white.

If we didn’t write ‘that letter’ to social services, saying we wanted LB to live independently when he finished school in summer 2014, he would get lost from the system. We needed to have ‘that letter’ on file. So it’s recorded. We didn’t want to be scrabbling around in crisis, in five years time, desperately trying to engage with social services and no space to be given any choice in his living arrangements.

This week I’m a respondent at a workshop on ‘Changing Models of Motherhood’. The session is about ‘non standard mothering’. I’m uncomfortable with that term for all sorts of reasons. I want to call it ‘different’, ‘hindered’, ‘frustrated’, ‘hampered’, ‘unsupported’ mothering. ‘Non standard’ implies a benign, though less valued, type mothering but one that is somehow still within the gift of the mother/child relationship.

LB’s current distress relates to external factors and is compounded (or created) by a lack of appropriate, timely, responsive rather than reactive support. I don’t want to write ‘that letter’. For me, it goes against what I consider to be ‘good mothering’, non standard or whatever. It seems harsh, punishing, unfair and I worry it will expel him to some, as yet unknown, space. A kind of containment.  Experiences of social care so far have been pretty mediocre to downright crap. For example, the council funded sessions of peer buddying to take LB out and about, and the care agency sent a man in his fifties because there were no other staff available. I know that the rhetoric around choice and personalisation is hollow. There ain’t a meaningful choice.

So, writing ‘that letter’ fills me with dread. I know its got to be done. But I still don’t know why it does. It shouldn’t be this crap.

*And I still don’t know what ‘panel’ is.

Nothing short of a miracle…

“Mum?”
“Yep?”
“Can I have a bath Mum?”
“Yep. Course you can!”
“Mum?”
“Yep?”
“Can you find me some clean clothes to wear Mum?”
“Yep. Of course I can.”
“Thank you Mum.”

Unbelievable. In the best possible way.

Revisiting tits and trolls

A rare post about twitter. Sorry twitter haters. A while ago I wrote a pithy little number called ‘Of tits and trolls’.  Now, after getting the latest Moran storm tweeted into my timeline over the past 24 hours, I’m rethinking my support of the ‘block’ button. Basically Moran wrote a column about equality which started with a parody which was the only bit available to view online for non-subscribers of the Times. This caused offence. Moran has a bit of history of causing offence [sive].

Helen Lewis then wrote a laboriously detailed defence of Moran putting ‘everything’ in context. This has been retweeted off the planet. The trouble is, the context that Lewis draws on is sterile and stripped of the emotion, pain, devastation, weariness, tedium, injustice, discrimination, harm, exhaustion, etc, etc, etc, often experienced by the people who are so incensed by Moran’s careless journalism. For me, Lewis’s post reinforces some of the complacency and ignorance that tinges the writing of many journalists (not all of course) who have little or no understanding of what it is like to grow up outside of, or on the margins, of mainstream life.

Should Moran have some sort of insight or understanding of these experiences? I think she probably should given her position and reach. She’s in a position to make a difference. But there’s the block button. That protects Moran (and others) from having to engage with
difference. Well the block button and the concept of ‘troll’.  The trouble is, blocking ‘trolls’ (i.e., people who disagree with you) will lead to twitter becoming a tedious, turgid space where you’re surrounded by similar others, with your views and values protected as kind of cosily superior and untouchable. Instead of blocking, ignoring offensive posts is probably as effective. And allows space for discussion and change.

Monitor, distract (and Chunky Stan)

Brief summary. LB’s become very anxious, constantly agitated and out of sorts over the past couple of months. He’s developed a fear or phobia of someone harming him.  His teacher/school nurse have suggested he be referred to mental health services which we’ve resisted. First, because we feel the medicalisation of these dude kids is a bit too free and easy (and can be damaging), and second, because previous encounters with mental health services have been pretty pointless (along the lines of “Er, have you thought of using star charts?”)

ryan5-25Then the Christmas tree fell over. Probably because all the baubles had been put on the same branch during a bun fight deccy situation. ‘Mmm’.. I thought. ‘This don’t bode well’….

Christmas morning, LB lost it over a tiny thing and had a distressing episode (? breakdown? frenzy? malange? Slinky malinky?) Not sure what language there is to describe this sort of thing, other than crap, meaningless jargony social care/health type stuff). But horrible. For everyone. Especially so at Christmas.  He stayed home, rather than going to his dad’s, and we swung into a ‘monitor and distract’ routine. For those of you who haven’t come across this (you lucky bastards), it goes like this;

    1. Constantly listen and look for any signs of mounting distress (in LB’s case, talk of being attacked, gesticulating and gurning).
    2. Act instantly to stop these (in LB’s case, through a firm ‘Stop it now’).
    3. Follow this up with a distraction (in LB’s case, an Eddie Stobart book, Mighty Boosh DVD, drawing cartoon figures).
    4. If necessary, follow this up with an uber distraction (in LB’s case, a very long, hot bath).
    5. Revert to A.

ryan5-23So 48 hours of monitoring and distraction was successful but relentless, wearing and, again, pretty shite over Christmas. We also weren’t confident of containing his distress anywhere other than home. I called the GP who suggested a type of prozac. And some emergency tranquillisers to use, if necessary, until the medication started to work.

That was yesterday morning. Last night (after step D) LB turned into a bit of a chill pill. We stayed up watching documentaries like Cop Squad with him. Enjoying the peace.

A mistake of course. Other family members also need monitoring. Like cheeky Chunky Stan.

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Christmas Wrapping

LB’s presents this year. A success. We managed to get him a die cast cattle truck that he’s wanted for the best part of this year. Very, very cool. And Eddie Stobart; The Ultimate Guide to British Trucking Legends (by Martin Roach). A full colour, hard back guide to the legend that is Eddie S. Rock and roll presents that are kind of age appropriate (or at least no Playmobile for the second year in a row).

After wrapping them up, I couldn’t resist going to check with him what he wanted for Christmas. Just to enjoy hearing him say ‘Cattle truck Mum’ again. For the last time.

“A onesie Mum”, he said. Without missing a beat.

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Happy Christmas!

Transition (a steady descent)?

Here’s a photo I love of LB  at his last but one residential school trip in Devon. The one before last week when he had to be collected at a halfway point on the motorway, half way through the week. Because he was distressed, anxious and lashing out at a staff member.

OLYMPUS DIGITAL CAMERA

I’m not sure if I’m posting this photo to hold onto his obvious enjoyment/happiness during the trip, facilitated by school staff who consistently push the boundaries with the kids, or whether I’m posting it as a record of transition (which I’m increasingly interpreting as a steady descent) into ‘adult services’. It’s probably a mangled combination of both.

I don’t understand how we allow (stop? prevent?) this descent. This change from a reasonably happy dude to someone who finds themselves at odds with life. The circumstances around LB’s current anxieties are, at the same time, specific, random and seemingly  ‘irrational’. So difficult to understand and make sense of.

Lashing out at people, and demonstrating intense upset is hugely upsetting for everyone involved. It’s happened sporadically (but memorably) in the past, but it’s uncharacteristic for LB to be so consistently unhappy. He’s pretty much had a much loved role in our family. He’s happily bypassed years of bickering, fights, wanting to win, score, or just be heard. He’s always occupied his own space, peppered with youtube and Eddie Stobart (and, thankfully in the past, Keane). For the last couple of months, he’s been unreachable, different, anxious, unpredictable and unhappy. And fucking irritating.

I was kind of pleased the GP today resisted referring LB to mental health services. He said it was medicalising a problem that wasn’t medical. I agree with that. And appreciate his refreshing approach.

But how do we stop the descent. How we get the happy surfer dude back? And who will help. It shouldn’t be like this.

The British Gas Plumber

“Must admit, I’m not a great dog lover, me. And you get them…they kind of come up to me and sniff me knees. You know what I mean? They sniff me knees, but once one dog’s sniffed me knees, other dogs can smell that dog on my overalls and they all want to sniff me knees. I got a cat at home. That probably doesn’t help either, as the dogs can probably smell the cat too.  So I tend to shoo em away, like. You know, shake me legs a bit. But one man got a bit uppity when I did that. He was like “My dog wouldn’t hurt anyone!”, but these days, you don’t really know that. A lot of dogs that shouldn’t hurt people do hurt them. So I try to keep away from them… Yeah.. Just the one sugar thank you.”

Baby Jesus in the walnut

“Come on everyone! Time to decorate the tree…!!”
SHUT UP!!
“Eh? LB come and decorate the tree NOW.”
“Mum. Can I go back on Youtube after Mum?”
“Yep…”
“I don’t think it’s straight. Is it straight?”
“It’s straight…”
“I think it’s leaning to one side. Look…”
“It’s straight...”
“Rosie could always go upstairs and get her protractor…”
“Mum you don’t know what a protractor is, do you.”
“Yes, I do.”
“I’m going to look for the baby Jesus in the walnut. The one I made at nursery.”
“Watch that angel, the head fell off remember…”
“I’m going to put this one round here on this branch…”
“Grrrrr… I’d forgotten how much Tom talks…”
“And this one can go here…”
“Tom you don’t.need.to.narrate.your.life.”
“LB put the bubble wrap down and get some decs on the tree.”
“Yes Muvvar.”
“Hey! I found the walnut!!!…Oh wait. It’s awful.
“Hahaha!!!”
“I remember it being much better than that. I thought it had a proper face and everything. Look it’s just got two dots for eyes…Felt tip dots??”
“HAHAHAHA!!! It’s really rubbish!!!”
DON’T PISS AROUND WITH THE TREE!!!
“Hahahahahahahaha!!!”
“I’d forgotten how stressful decorating the tree is.”
“I still don’t think it’s straight.”

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