Sloven sunday and an Indian feast

I spent the weekend cooking Sunday lunch. Bit unusual for me. And a bit of a mixed Indian feast. Tricky if you don’t eat meat to gauge flavours in a lamb spectacular (Nigella’s Indian Feast). The lamb curry was as tough as old boots last night according to sniffy Rich. This morning I got it out the fridge, tried to ignore the obvious rubberiness of the meat and got on with the rest of the feast; (off piste after mutter paneer with my legendary dahl (it really is and I ain’t no cook) and Madjur Jaffrey’s  potatoes with mustard seeds/cumin and stir fried cauliflower. At one point I thought about googling ‘how to soften up rubbery old lamb’ but Nigella warned this might happen and said an overnighter in the sauce would ease the troubled meat.

She was right apparently. Rich and Rosie tucked in gamely. Rich had a painted on smile throughout the meal (my cooking is often the source of some tense exchanges) but they said it was great and they were looking forward to eating it for the next ten years. (I went more for Indian wedding feast than bog standard feast).

Anyway. After a kip, I hit twitter and discovered that Sloven are celebrating being shortlisted for the Nursing Times 2014 award for the health and wellbeing of their staff. Along with pics of the Sloven senior team celebrating this development.
sloven

I don’t know. I know the world shouldn’t stop because our dude died. I know Sloven have around 9000 staff many of whom are probably ace. But seeing the CEO ligging about celebrating what is a meaningless, commercial (short list t-shirt?) enterprise while we’re still waiting for fairly basic answers (like, ironically, the outcome of staff disciplinary actions) is pretty rubbish. Leaving a young, healthy dude to drown in the bath and then spitting his family out in a series of obstructive, deceitful, bullying and delaying actions, is off the scale of what the NHS is (or should be).

I wondered if an overnight stint in some sort of sauce could ease this troubled bunch. What it would be like if there was a recipe book or manual somewhere that says ‘be aware that the Trust might well act like complete gobshites after the death of your beloved child/partner/mother/sister… But don’t worry. You don’t need to do anything. Just leave it with us. By tomorrow, the rubberiness will be gone.’

Wow. Wouldn’t that be something?

Sadly, there is no Nigella in this context. There is no sauce. No overnight in the fridge. None of the obvious suspects – ministers, Monitor, NHS England, CQC, the HSE or, as yet to join the party, the Health Ombudsman – seem to have de-rubbering magic.

The Sloven party continues.

PALS and fuckwattery

Seems to be the case that Sloven can lie, spin and bully to their hearts content. I received another letter from the Board Chair this week. Billy bullshite strung together by the stubborn stains on a pair of Sloven undercrackers. Then Sloven, seemingly in cahoots with that bastion of glitzy self award ceremonies *cough cough* razor sharp reporting, the HSJ, stated that Katrina Percy stepped down from the RCGP Inquiry into Patient Centred Care in the 21st Century last summer. For the greater good of humankind.

Given that myself, Noelle Blackman and Chris Hatton had a fairly awkward, distressing (for me) and lengthy discussion about KP’s place on this inquiry with the chair, Mike Farrar, on October 6th, this latest statement from Sloven Towers is yet another lie. But hey, maybe her resignation letter got lost? Maybe, as the Hatt suggested on twitter yesterday, it’s what the woman in the Going Viral video was looking for?

We have a chuckle in the justice shed.

But actually it’s pretty shit really. Given these practices can just continue even after they are exposed. I’ve documented terrible treatment towards us on these pages. To what end? More tumbleweed. Apparently we need to put in an official complaint through (Sloven) PALS (Patient and Liaison Service – I think).

I made a complaint about Sloven in March 2013. My main complaint was that I wasn’t listened to. After some delay (obligatory) I received the outcome in June. Complaint not upheld. Two weeks later LB died because I wasn’t listened to.

Fuckwattery anyone?

The Wrong Nolan(s)

The Mother Blog Briefing continues to chill me. I woke in the early hours with a sense of horror and deep distress. Glad to read Tim Turner’s thoughts on the data protection issues raised by this document. Some relief in hearing sense.

A blog briefing. Within 24 hours of LB’s death. A blog monitored for months yet no engagement with the content. Other than scrutiny through a reputation and defamation (hungry) lens. Missing the warning signs of missed seizures and lack of action. Post Winterbourne View. So revealing of the disconnect between humanity and process that pervades health and social care.

I listened to the Sloven Board Chair talk for over two hours a week or so ago. My head spun and I felt sick afterwards. Simply bullshit.  Eau de Sloven Shite.  Not intentionally, I’m sure, given the sincerity he tried to convey. But lines fed to him by the senior Sloven team, swallowed and regurgitated. Despite the complete absurdity of much of what he said.

  • He can’t walk down the corridor in the upper regions of Sloven Towers without someone stopping him to tell him of my international reputation (if only) in learning disabilities and longstanding campaigning. (AKA: ‘Mum is known to the trust’).
  • LB was such a funny and entertaining young man, staff forgot he was a patient and treated him as a part of the team.
  • There was no monitoring of my social media activity.

There is a straightforward set of principles guiding public office holders. The Nolan Principles.

Nolan psCracking set of principles. For those serving the public. Both of which Sloven seem to be unaware of. Makes me wonder if the wrong Nolan(s) are filling the Sloven corridors. With this bunch, anything is possible.

State of play

Nearly 16 months now since LB died. 16 long months. Nothing’s happened really in terms of change or accountability. The preventable death of a fit and healthy young man in the ‘care’ of the state. In an NHS unit. In the UK. In the 21st century. A young man who was victim of a system that simply doesn’t recognise learning disabled people as human. Can you imagine?

LB’s death has crushed our lives. The damage caused by 16 months of fighting, campaigning and raging is unknown yet. But given I feel pretty shit on a daily basis, probably substantial. Standing up to an NHS trust that bullies, deceives and demonstrates complete disrespect/disregard for us, is pretty relentless. The Sloves throw money at reputation repair and focus on protecting staff (a selective protection given a staff comment here). The experience, for us (an irrelevant, irkesome family), is the equivalent of a daily battering. An experience documented by other parents like James Titcombe, Anne DixonRosi Reed and siblings like @waketheworld. How can this be?

So where are we at? In no particular order, as always:

    • One staff member so far is being investigated by their professional body after a referral we made. Sloven staff disciplinary proceedings are like a stuck record; continually finishing in the ‘next few weeks’ or ‘ongoing’.  Shameful, shameful delay and prevarication. The Verita report makes clear individual staff failings. It should not have been our responsibility to do this.
LB 1 million

CEO, Sloven Health, 24.2.14

  • The Death Review is out to tender and will take 4 months.
  • The police investigation is ongoing.
  • The second review into LB’s death, covering transition, mental capacity, restraint, why he went into the unit and broader governance issues, is underway by Verita. Due to be completed early next year.
  • The pre-inquest review meeting is on November 25th.
  • The Slade House site is shut to patients. A problematic silence about what will happen to this prime chunk of land continues. And what is happening to people who would have been admitted to the units there. Nothing like allegedly sweeping in to take over known problematic provision in a different county, allowing it to worsen (till something serious happens), closing it and flogging the land. Nope. Nothing like it.
  • On a brighter note… the #LBBill is going at a pace that Sloven should take lessons from (no vimeo in sight). The easy read version of the draft bill is being produced and will be blasted out for discussion in a week or so. Complete energy, commitment and passion.
  • The LB Fighting Fund total so far, after remarkable efforts is £24, 267.77. Wow. Wow. Just wow. So many people, many of whom we’ve never met and who never met LB, have contributed to this amount. Just brilliant.

We’re heartened by the remarkable solidarity #justiceforLB demonstrates. We ain’t got a vimeo budget but there are countless people willing to step up and do all sorts at the drop of a hat.

We’re also fucking delighted that our quirky dude, who loved buses and laughter, seems to have touched, and even impacted on, people’s lives. What a legend. LB bus museum

The writing on the wall

Had a day off today and had a lovely lunch with lil sis, Sam. Once she’d gone, the latest FOI pinged into my inbox. More stuff from the County Council about STATT. This includes a second (in addition to the November 2012 quality review) Quality and Safety Assurance Review of the Oxfordshire Learning Disability NHS Trust (OLDT), just before the Sloven takeover, commissioned in September 2012 by NHS South of England. Conducted by an external consultancy.

The review states that the impending acquisition, issues arising from Winterbourne View and those relating to an inpatient client led to a renewed intensity of interest and scrutiny on OLDT by the Strategic Health Authority. It discovered an insular organisation, with high levels of restraint, a culture in which a casualness ‘about strict process’ had been allowed, variable (even ‘dysfunctional’) relationships with commissioners and a complacency of attitude that was characterised as a lack of awareness and transparency. The review concludes that the culture can ‘best be characterised as a combination of defensiveness and complacency in respect of quality, safety and risk‘.

It recommends that Sloven swiftly act to ask the right questions of senior managers and ‘gain more robust assurance about incidents, actions and outcomes’. It also recommends that Sloven review staff training requirements and work to reduce restraint use.

Nearly 11 months before LB died. Everything that needed to be known about STATT was known. Documented, stamped and signed. A legitimated torture chamber. Post Winterbourne View.

We, knowing none of this, drove our beautiful and beyond loved boy, a couple of miles along the Slade, that cold, dark March evening. To his death. A death that could not have been more clearly written on the walls of Sloven Health and others.

You absolute bunch of fucking bastards.

Talking board level

Justicequilt-5So. The call with the Sloven Board Chair. His answers to our questions can be read here. A lot of the call involved going through these, in turn. None of them stand up to much/any scrutiny. And little changed during the call.

A culture of I/we’ve been informed that this, that and the other happens, or is about to happen, without supporting evidence, seems to permeate Sloven Towers. And wider.

Fun and photies

Had a crap day on Sunday, flung back into a space in which I couldn’t quite believe that LB died [he died?] the way he did. I think about him pretty much every waking moment but the way in which he died is (necessarily) pushed to the margins most of the time.

Later this afternoon I’ve got a call ‘booked’ with the Sloven Board Chair, Simon Waugh, to discuss the answers he eventually sent in response to our questions around Sloven actions to LB’s death. These answers pretty much say nothing. Other than ‘Er, it wasn’t us guv’ or ‘It was the non clinical staff’.

I don’t want to talk to him. Like I don’t want to chase up the Central Southern NHS Commissioning Support Unit to ask why 6 months of records were missing from my access to record request last week. Like I don’t want to lug a case full of beyond ridiculously Sloven redacted text to an information specialist*. Like I don’t want to read document after document detailing unspeakable ‘provision’ in Oxfordshire with a forensic eye*. Like I don’t want to wait years for any accountability or justice for something that was just off the scale of fucking wrong and we all know it.

I don’t understand (and this is what dominated Sunday) how a young, isolated (in spite of having a full on loving family) person, who was fit and healthy, could die a preventable and beyond imaginable death. By anyone’s standards. In a publicly funded organisation. A heavily staffed apparently specialist NHS unit. [Just add whatever into this space. There are no words. Nothing we can grasp, real, imagined or otherwise. Just a situation of horror and utter despair.]

Katharine Chrome (the wonderful Who by fire blogger and one of the legendary band of forensic shite analysts), tweeted earlier that an old post of mine that re-surfaced at the weekend reminded her of the time when this blog was about fun and photies. Blimey. Yep. It was. And a celebration of quirky family life.

Constantly snapping pics is one of the many things that has stopped for me. Like having a bath. Smiling at strangers. Reading a daily newspaper. Being wildly optimistic. Feeling content or relaxed. The rippling consequences of experiencing such a catastrophic event (and the full weight of a bullying NHS Trust for over a year now).

I hope that the fun and photies will return at some point. #justiceforLB has been a breath of fresh air really. A complete tonic in the face of such shite. If this astonishing, unprecedented, collective force of dedicated, committed, loving, full on, spontaneous, irreverent, thoughtful, creative, artistic, informed, hilarious, energetic, dogged, expert, generous, completely voluntary, skilful, diverse, different and rule breaking embracing gaggle of awesomeness, can’t generate meaningful change, then it really is time to give up.

So, here’s to this afternoon. The next stop on the Sloven slow train of prevarication and dirty tricks. And a cheeky number suggested by Matthew Smith.

  *There has been some legendary, behind the scenes work, examining what appears once these hefty stones are lifted.

The Sloven way: a lesson in arrogance and worse

Reading the emails from Oxon county council and clinical commissioning group, I’m struck (again) by the astonishing arrogance of Sloven Health. I’d already heard that when they did their royal tour of Oxon to smooth over the ripples caused by LB’s death, the failed CQC inspections and Verita’s damning report, they came across appallingly. Gail Hanrahan describes one such meeting brilliantly.

I’ve only heard Sloven senior team members talk on the radio/TV news but it’s a throwback to past decades to hear people clearly lacking any understanding about learning disability talk nonsense about ‘the modern way’ and ‘false positives’.

This arrogance is also captured in the Oxon email exchanges about this tour. In one meeting they were apparently concerned that the focus on learning disability in “the north of our patch” was impacting on other services they deliver, and they appeared offended to be asked for a copy of their ‘detailed action plan’. The too big to fail monster clearly in action.

The letter KP wrote to us a month or so ago is another example of this. A letter steeped in ‘I’m absolutely right’ statements and worse. A document  that will surely become an exemplar in ‘How not to engage with families of patients who have died through  a dereliction of duty of care’ events in the future.

The story leaping out from the (hundreds of) pages of emails, reports, minutes from across the board, is that Sloven took over crap provision, did nothing to sort it and are pretty irked that the likes of the CQC and Monitor are now breathing down their necks.

Something is badly wrong when an NHS Trust demonstrates what we’ve seen and continue to see in last 15 months.  NHS provision should surely be about continually trying to enhance and improve care provided. What else does it exist to do? (Obviously we have views on this but here we’re talking about what they ought and are funded to do).

Meanwhile, Sloven merrily collect HSJ awards while the police continue their investigation into LB’s death.

I suspect part of this arrogance comes from having apparently unlimited funds to try to make ‘problems’ disappear. Unlimited funding to chuck at legal teams to outmanoeuvre the odd family who are able (in a beyond unequal playing field) to avoid being crushed in the early days and just about drag themselves to the finish line years later.

A barbaric, inhumane situation. Seemingly condoned by those who must have the power to stand up and say “This ain’t right.  It stops now,” and don’t.

Justicequilt-4

A social media affair

ryan5-26Mid afternoon yesterday an unnamed person turned up at work, managed to find our office, handed over a memory stick, read out the password for me to unencrypt (disencrypt?) the files on it, checked they could be opened, got me to sign a letter and left. All very secret squirrel.

I was left with three heaving PDFs. Communications from Oxfordshire County Council and Clinical Commissioning Group mentioning me and/or LB between March 2013 to 27 July 2014.

I’ve only glanced through this stuff. Hundreds of pages. So just wanted to jot down my initial thoughts. In no particular order. And ignoring the stuff of ongoing police investigations.

There is pretty much no recognition/acknowledgement or reflection a young man died and he shouldn’t have done. No surprise now really. It’s largely about blame, self protection, reputation and process.

The pages are littered with mentions of ‘mum’. Please ditch the ‘mum’ stuff. It’s so blinking patronising and degrading.

The records start in September 2013. A six month chunk is missing. More carelessness or incompetence (or worse). Either way, not acceptable. Simply unacceptable.

Redactions are reasonable. Mostly names and occasional small sections of text blacked out.

Hints of sensible thought are present which is refreshing. Reflections that the findings of the Verita report are awful and media coverage can only be negative, for example.

A stand out thing is surveillance. There are transcripts of the Phil Gayle show (in which the Gman shines through with his piercing questions) and twitter, this blog were a constant source of discussion and even information. Rich’s ‘Move on down the Bus’ song was circulated among the CCG. One commissioning bod found out about the ‘bath ban’ on these pages. (For info, apparently it was instigated by a ‘nervous’ consultant and was lifted on the day of the CQC inspection… Any news on the staff disciplinary actions I wonder?)

I tweeted yesterday that I was beginning to understand the viewing figures of this blog. It must be bookmarked across Sloven Towers, the local authority and CCG. And, I suppose, other organisations outside of Oxfordshire who may be following with a mix of fascination at the complete shiteness of the whole situation and relief that they ain’t involved/implicated.

Of course it doesn’t have to be surveillance. Social media has created a space that offers health/social care professionals alternative ways of gaining insight into the experiences of people/patients. And the consequences of their actions and the systems that underpin them. One or two people in these exchanges seem to get that.