Blatter, schmatter and candour

I came across Sloven’s 2013/4 Annual Report today in which they make the extraordinary claim that they are 100% compliant with Duty of Candour obligations (p121).

candour100% compliance? Eh? How can claiming LB died from natural causes in July 13, failing to disclose his full medical records until November 14 (via the coroner), accepting that his death was preventable in February 14 and then claiming again he died through natural causes in November 15, fit with duty of candour compliance? How can not sharing how Nico Reed died with his family for nearly two years be candour compliant? Or do learning disability related incidents stand outside this indicator?

Up until the last couple of months, I’d probably have written to the Board chair asking for some clarification on this. Not any more. The OCC report (OCCRAP) and their response to my obvious and fully justified distress about this report, on top of the various brain melt communications we’ve had with the now ex-Sloven Board chair/still-in-post CEO documented on these pages, have demonstrated that they have the power to do what they want. Including telling the most fanciful of lies and sticking them.

It’s simply one fucked up, archaic and sometimes corrupt system.

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Critical questions

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This afternoon, stuck on the Oxford Tube coming out of London, I was reading negative academic related stuff on my twitter timeline. Then my niece forwarded her undergraduate dissertation. She’s just completed a degree in linguistics at Leeds. For her dissertation she did a critical discourse analysis of four documents; Sloven’s public statement on the publication of the Verita report, their briefing document to Monitor, and letters from the CEO and Board Chair to us.

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I still don’t fully understand what transitivity is but non-apologies are pretty straightforward. In a kind of a random shambles; human, mother, (proud) aunt, campaigner, academic, raging woman, Oxford Tube captive and probably other identities, I read this dissertation. Between Hillingdon and Lewknor.

I was struck, in particular, by three things. First, it’s an example of an undergraduate dissertation that’s robust, rigorous, relevant and political. I’m impressed by both Ally’s work/focus and the encouragement and support she was obviously given by Leeds.

Second, (and I won’t say much about the content right now) the conclusions are clear, carefully evidenced and show that Sloven (and probably other NHS Foundation Trusts/local authorities) don’t operate anything approaching a whiff of candour, openness and transparency.

Third, if an undergraduate student can produce a clear, critical and well evidenced piece of research demonstrating this, why is so much meaningless talk still being talked?

OCCRAP, sometime and darkness

Found out today that the investigation into the actions of the unit staff member we referred to their disciplinary council in May 2014 is further delayed because new information* has emerged that will feed into this investigation. Wow. Every aspect of trying get accountability for what happened to LB has been delayed. Interminably.

The two forces of darkness, as I now see Sloven and OCC, are key delay players. Sloven explicitly, through non disclosure of documents, sitting on reports and generally being obstructive. OCC are slightly less obvious but do a cracking number in delay on the quiet. We now have to wait while their ‘independent’ consultant goes through the issues we raised about the ‘independent investigation’ they conducted into LB’s death without informing us. [For the ease of clarity here, I’ll call this report OCCRAP]. Apparently he’ll do this sometime next month.

[NB: In the delay game, there are no deadlines. Just vagueness. The only deadline so far is LB. And he had no say in that. Everyone (other than families) has  flexibility and resources to do what they want. Without remorse, reflection or hint of humanity].

The coroner sensibly said he wouldn’t read OCCRAP until it had been revised. Verita read it and are waiting to hear OCCs response to our response. Their report, (Verita (2) [sorry], has a delayed publication date which is now expected sometime in the next month or so. [Verita (2) officially started September 2014 for six months].

Our response to OCCRAP was, and remains; ‘Bin the fucker. Pile of toxic shite’. But this response is discounted. We have no power (underlined by the absence of challenge from those who could). So we were forced (bullied) into examining OCCRAP line by line and documenting inaccuracies. A process of phenomenal wastefulness, inefficiency and unspeakable distress.

We’re left wondering when did reputation (and vested interest) became the overriding consideration of ‘public’ bodies?

And how can so many in influential positions sleep so apparently contentedly through this? Justicequilt-207 *Thank you to the person/s who came forward with this information.

A letter, a picture and OCC

I got a holding letter from the Director of Adult Social Services today. Yesterday, still raging about their ‘independent review’ I drew a picture. The letter says the usual blather and bullshit. We did nothing wrong guv and a blatant attempt to reframe the review as an integral part of the Verita investigation. It includes a cracking non-apology that must rank up there in the all time top ten:

I recognise you are upset about this and I am sorry that you are upset.

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Ground elder and the #LBBill

Justicequilt-281After years of saying I would, I’ve started doing some gardening again. This is after fab help from family and friends (thank you). The main bit of work left now is the ground elder that’s replaced grass over the past few years. I’ve got into a bit of a rhythm trying to get rid of this. Half an hour here and there. A load of worms and two frogs. And a blue plastic leg. Thunderbirds again I suspect.

Ground elder. Blimey. A beast and a half. The roots go on and on and on. Ending in the tiniest threads with remarkable strength. The more digging, the more there is. So blinking similar to our experiences with both Sloven and Oxfordshire County Council. A rhizomatic happening of roots (power, deceit, twists and turns); the surface giving little hint (to the uninformed observer) of the well established, relentlessly strong, thriving activity below.

I clear a patch apparently thoroughly, move to the next bit and pull on a random root that takes me back to the the cleared patch. Wow. How could I miss a foot long root in a tiny patch of earth?

This week I heard that there were rumblings among official type bods that there was too much focus on LB. That

‘… an awful lot of time is being spent reviewing what happened to one young man.’

There could never be too much focus on what happened to LB for me. Well not until we get some sniff of accountability maybe. And maybe not even then. But #JusticeforLB has never been just about LB. As our ‘made up’ manifesto made clear over a year ago now. I tossed out the ‘denial’ stage of useless grief models on day one. Dead is dead and there ain’t no changing it [howl].

The campaign has always been about trying to get broader change in (a ground elder riddled) health and social care structure and provision. About creatively and doggedly both making visible and trying to remove the deep rooted crap that flourishes in these spaces.

One way to do this is by asking MPs to support our Private Member’s Bill; Disabled People (Community Inclusion) Bill 2015 (‘#LBBill’). A fairly straightforward (though speedy) task of tweeting, emailing or writing to your MP in the next week or so to ask for support.

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Complainanting, crapness and death

Two years ago today I wrote this; The Unit. Day 63.

24 days earlier I made a complaint to Sloven/OCC. My main point about not being listened to and a lack of recognition about the seriousness of the situation was ignored.

complaintWhat exactly are we fighting about still? And why?

Anyone?

[An old friend, Bob, died on that same day, unexpectedly. This post is (hopefully appropriately) dedicated to him].

Thunderbirds, the scullery, care plan and the candlestick

Justicequilt-201Third pre-inquest review meeting yesterday. Pretty buoyed by the wondrousness of the Sparrowhawk Art/LiveatLICA event on Monday – captured in its deliciousness in a Guardian online gallery – we headed to County Hall. To be confronted by this screen in the foyer. The colourful and textured fabric of LB’s life reduced to an outdated, clunky and unnecessary statement. ‘The Late’… [Howl].

It really is a number sitting on a bench in a county courtroom. Listening while details relating to your child’s death are thrashed out in front of a Coroner. Sloven and their legal team sitting to the right. Family and journalists sitting behind. Given it’s supposed to be an inquisitorial process, Sloven attendees had a couple of chewy exchanges with their legal team. But we all know it ain’t really inquisitorial. That’s just fakery. A pretence signed up to by many.

The twists and turns of these pre-inquest meetings have been pretty extraordinary. Sloven have (so far) argued drowning is a natural cause of death, argued against a jury, argued that the reviews into LB’s death meant an Article 2 inquest wasn’t necessary and then, once the Coroner ruled that it would be an Article 2 inquest, tried to get the inquest moved to the High Court because the reviews made it very complex. They now seem to be circling in a new direction. One with a hint of clinician.

Like a kind of Cluedo on speed; there was no wrong doing… no body… no weapon…it was the dog… the cat … Miss Scarlett… Thunderbirds, the scullery, care plan and the candlestick.

We’ve just steered a straight path really. But then this isn’t a game to us.

Fieldwork, ferries and feedback

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Today involved five trains, two buses, two ferries and two taxis to get to the Isle of Wight and back for fieldwork. Pretty epic and a little bit unplanned (in terms of timings). But other than one wrong train, one wrong platform, a left tripod and couple of necessary sprints, it went like clockwork. We met some fab people. Learnt a chunk of stuff. And somehow were back in Oxford before 6pm.

Meanwhile, Verita were holding their ‘stakeholder’ event to feedback emerging findings from their broader review into LB’s death. In Oxford. The obvious suspects present (or their emissaries) plus some families.

Let’s just say that trundling along a pier, in almost sunshine, on an old London Underground train, was probably a good place to be in the circumstances. One that LB would have loved.

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OCC; the farce continues

Had a bit of a tense convo with the Director of Social Care on Monday. Their crap old report had been sent to Verita to be included in their broader review. And OCC’s legal team wrote in response to our questions about this review: “As we indicated it did not seem appropriate for the Council to seek your client’s involvement at that stage [during the review] given that she would have an opportunity to be involved with the Verita investigation and could make her comments in relation to the Council’s report as part of that.”

Wow.

So Sunday was spent correcting that crappy old report. A process that made me feel ill (I always feel crap these days but the work and emotion this task involved was too much). Around 4pm on Sunday I sent a shirty email saying I’d be invoicing the council for the work involved.

Anyway, the call on Monday was a waste of time. He wasn’t budging on his defence. It was fine to do such an investigation without our knowledge or involvement. It was fine to send the review to me by email out of the blue on a Monday morning. OCC had done nothing wrong. And the like. At one point he said in exasperation “You do things the wrong way, Sara. We offered you a meeting when we sent the report and you put your comments online for other people to read.”

Another brain melt moment.

Sorry Mr J. Putting stuff online is the only way to make visible the sneaky and deceitful practices that operate both within Sloven and OCC. Where families have little or no power. Given you commissioned and published this report without our knowledge, and were made to disclose it to us a few weeks ago, you really ain’t in a good place to talk about the wrong or right ways of doing stuff.

Reimbursement for my time was refused. With a classic and again dishonest statement;

Whilst I appreciate the time and effort you have spent reviewing the report, this report was an internal review to highlight any learning for Oxfordshire County Council.

Sparrowhawk Art…? Wow.

10269535_300807743417634_2373895719301392285_nHave been a bit out for the count over past days. Having to go through the OCC ‘report’ and detail inaccuracies at the weekend was a particularly low point (I know). Even within a (publicly accountable) system we now know comes stamped with ‘shite, delay, more shite, a shedload more delay and shite. Then wait for more shite’ there are clearly further depths to be mined. How can this possibly be?

So much going on that I lost sight of the magic for a bit. This has been restored by writing labels this evening for the extravaganza that is planned at the Peter Scott Gallery, Lancaster University, on Monday 18 May. Live at LICA (Lancaster Institute for the Contemporary Arts). A skin of the teeth jobby in terms of organisation in some ways (on our part), but one clearly soaked up and embraced by the organisers.

Sparrowhawk Art. Sparrowhawk Art? Wow.

On display will be the remarkably diverse, random (typically bus related) art, objects and artefacts relating to the #JusticeforLB campaign and #107days. These have been sent to Lancaster (and the careful hands I hope of Chris Hatton, the driving force behind this exhibition), in various ramshackle parcels from Oxford, Devon and Yorkshire.

Rosie was given the task of sending two boxes of stuff last week after I ran out of time forgot to send them before going to Norway. She forged a good working relationship with the local post office in a collective and humorous rising to the challenge of sending a range of stuff, including breakables, effectively and cost efficiently. A week earlier, wonderful mates/work colleagues stepped up, stepped in and packaged textile art and other treasures for another successful transfer. Meanwhile, the iconic Glastonbury flag and Postcards of Awesome also made their way to Lancaster University via George Julian and Dan Goodley. The Justice quilt already on display there.

Just wow.

I won’t give too much away for now. The labels alone – the telling of the story of a remarkable social movement arising through what happened and the heartwarming and collective response to that happening – are, in themselves, a form of documentary.

I will say that the exhibition will be extraordinary. And a panel discussion is being held at 3pm with Graham, My Life My Choice, Dominic Slowie, NHS England (remotely), George Julian, Janet Read, Imogen Tyler and Chris Hatton.

And tea, coffee, snacks and a pop up bar.

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